NELS-National-Report-2023

Findings of the National End of Life Survey | 2023

Overall care in the last three months Four questions on the survey asked about the overall care that the person who died received in the last three months of life. Figure 3.26 shows the average score (out of 10) for these questions. The highest-scoring question related to involvement in decisions about their care, with 57.9% of participants (1,817 of 3,136) saying that their relative or friend was deȴnitely involved as much as they wanted to be in decisions about their care, with 32.1% (1,006 of 3,136) involved ‘to some extent’. 27 The lowest- scoring question concerned coordination between services, with 23.9% of people (892 of 3,739) saying that they did not feel there was good coordination between the di΍erent services and healthcare sta΍ who cared for their relative or friend in the last three months of their life.

Figure 3.26 Scores (out of 10) for questions on overall care in the last three months

0.0 1.0 2.0 3.0 4.0 5.0 6.0 7.0 8.0 9.0 10.0

Q61. During the last three months of their life, did healthcare sta΍ provide support to meet their religious or spiritual needs (things like talking, praying, quiet time or access to a religious or spiritual leader)?

7.0

Q62. During the last three months of their life, were they involved as much as they wanted to be in decisions about their care?

7.4

Q63. During the last three months of their life, did healthcare sta΍ help and support them with family worries or concerns (e.g. caring for someone else in the family or help with diɝcult conversations)?

6.3

Q64. Did you feel that there was good coordination between di΍erent services (e.g. GP, hospital or hospice) and healthcare sta΍ who cared for them in the last three months of their life?

6.1

27 This does not include 941 participants who selected ‘they did not want to be involved or were not able to be involved’ and 89 who selected ‘don’t know’.

59

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