Findings of the National End of Life Survey | 2023
37.7% of participants (459 of 1,217) said that their relative or friend was visited by a member of the hospice, palliative care team or other specialist palliative care service in the last two days of their life. 90.4% of people (n=1,066), whose relative or friend died in a nursing home, said that their relative or friend died in a single room, while 9.2% (n=109) said that their relative did not die in a single room. Of 1,192 people, 1,063 (89.2%) felt that their relative died in the right place, while 55 (4.6%) thought that their relative did not die in the right place. 12.2% of participants (140 of 1,148) said that their relative or friend was told by a healthcare professional that they were likely to die, 57.5% (n=660) said that the person was not told and 30.3% (n=348) said that they did not know. While 63.5% of bereaved relatives (733 of 1,154) indicated that healthcare sta talked to them about what to expect when their relative or friend was dying, 27.5% (n=317) said that healthcare sta did not talk to them about what to expect. 65.5% of participants (298 of 455) said that a discussion about what to expect when their relative was dying would have been helpful. Figure 4.5 shows the average scores (out of 10) for questions on care provided in nursing homes in the last two days of life, compared to the national average. The highest-scoring question related to kindness and compassion from healthcare sta, with 91.9% of participants (1,067 of 1,161) saying that their relative or friend was always treated with kindness and compassion by healthcare sta during the last two days of their life. The lowest-scoring question related to involvement in decisions, with 6.5% of people 26 of 397) saying that their relative or friend was not as involved as they wanted to be in decisions about their care and treatment during the last two days of their life.
33 A further one participant selected ‘they did not die in a healthcare setting’ and four selected ‘don’t know’. 34 A further 74 respondents (6.2%) were not sure. 35 104 respondents (9.0%) selected the response option ‘not applicable – they died unexpectedly’. 36 This does not include 744 respondents who selected the response option ‘they were not able to be involved in decisions at this time’ and 26 who selected ‘don’t know’.
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