NELS-National-Report-2023

Findings of the National End of Life Survey | 2023

Experiences of care in a hospice in the last two days of life

“The hospice did not like her grandchildren visiting which was really sad considering the joy that they gave her.”

“The empathy and compassion shown by the sta΍ of [Hospice] was second to none. The palliative care team were excellent. We were given a family room and everything was done to make our mum was comfortable and free of pain during her last days.“ “The decision to place him in a Hospice was taken very late and he died in less than 24 hours. The Family would strongly have been of the view that he should have been moved earlier which would have made his last days more comfortable.”

“My husband felt very comfortable in the hospice and admired the way the hospice was run, and beneȴtted from the kindness and professionalism of all sta΍ involved. Genuinely, it was a wonderful place.”

“The best support my Dad received was in [hospice]. They were kind and supportive, right down to the catering sta΍. My dad’s room was lovely and we were able to bring personal items in so it felt more homely. We were able to visit whenever we wanted and stay overnight in his room which allowed us to spend the last days with him as he declined so quickly.” “The sta΍ in the hospice do an amazing job, however she was in a shared ward during the last week of her life with little privacy. They did their best with screens etc but it wasn’t great. Especially after she had been given a lovely private room on admission to the hospice but moved to shared ward after 2 days. which is diɝcult to understand given that they knew her time was short.”

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