NELS-National-Report-2023

Findings of the National End of Life Survey | 2023

97.3% of people (464 of 477) said that their relative or friend died in a single room, while 11 (2.3%) said that their relative did not die in a single room. 43 52.5% of participants (245 of 467) said that their relative or friend was told by a healthcare professional that they were likely to die; 115 (24.6%) participants said that the person was not told and 107 (22.9%) said that they did not know. While 83.0% of participants (386 of 465) indicated that healthcare sta΍ talked to them about what to expect when their relative or friend was dying, 70 participants (15.1%) said that healthcare sta΍ did not talk to them about what to expect. 44 127 participants (76%) said that a discussion about what to expect when their relative was dying would have been helpful. Of 476 people, 447 (93.9%) felt that their relative died in the right place, while 10 (2.1%) thought that their relative did not die in the right place. 45 Figure 3.8 shows the average scores (out of 10) for questions on care provided in a hospice in the last two days of life. The highest-scoring questions related to kindness and compassion and pain management. 98.3% of bereaved relatives (464 of 472) said that their relative or friend was always treated with kindness and compassion by healthcare sta΍ during the last two days of their life. 97.4% (450 of 462) said that healthcare sta΍ did everything they could to manage their relative or friend’s pain. The lowest-scoring question was Q85, with 6.4% (15 of people 236) saying that the healthcare sta΍ who told their relative or friend that they were likely to die did not do so in a sensitive and caring way.

43 Two participants responded ‘they did not die in a healthcare setting’. 44 Nine respondents (1.9%) selected the response option ‘not applicable – they died unexpectedly’. 45 A further 19 respondents (4.0%) were not sure.

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