Findings of the National End of Life Survey | 2023
Overall experiences of care at the end of life
“Visitors should not be denied, our father died alone. We all feel very sad about this. The emergency department was not ȴt for purpose at this time, it was totally overwhelmed... If my father had a bed in a ward, we would have been able to visit him.”
“The sta team in [hospital] were amazing. They communicated so well with us and included us in decisions on my father’s care in the ȴnal days and hours of his life. There was space and time given to us. We spent the last 24 hrs at my dad’s side even in the HDU dept. So caring, so considerate, so good.”
“Hospital sta in the last hours were amazing individuals. Hugely understanding of our situation, very compassionate, kind, supportive - fantastic individuals.”
“The last 24 hours were unnecessarily stressful and we would have welcomed more medical intervention to assist with Mum’s passing. We had to negotiate pain relief with palliative when the outcome was inevitable.”
“1. No home help at weekends. 2. Nurse only called once a week and twice the week mum died. Over a 5 week period of end of life. 3. No palliative care available. 4. No overnight help to family.”
“The nursing home were very respectful when dad died. They gave us use of the family/tv room and allowed us and our family spend as much time as we wanted to with dad. I noticed the circle of life sign on his door and at reception too.”
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