Findings of the National End of Life Survey | 2023
Participants were asked about their experiences of the care and support provided to them by healthcare sta in the last days of their relative or friend’s life, and after they had died. Figure 5.1 shows the average scores (out of 10) for questions on the participants’ own experiences of care and support provided by healthcare sta. The highest-scoring question related to sensitivity from healthcare sta, with 84.3% of participants (3,546 of 4,329) saying that healthcare sta always engaged with them in a sensitive manner after their relative or friend died. The lowest-scoring question related to support to talk to children or young adults, with 29.0% of participants (542 of 1,871) saying that healthcare sta did not provide enough help and support to talk to children or young adults about their relative or friend’s illness. 49
Scores (out of 10) for questions on bereaved relatives’ experiences of care and support
Figure 5.1
0.0
2.0
4.0
6.0
8.0
10.0
Q92. Looking back over the last days of their life, were you given enough emotional help and support by healthcare sta?
7.2
Q93. Looking back over the last days of their life, were you given enough help and support by healthcare sta to talk to children or young adults about your relative or friend's illness?
6.1
Q94. Looking back over the last days of their life, were you involved as much as you wanted to be in decisions about their care and treatment?
8.2
Q95. During the last days of their life, did healthcare sta explain their condition and care in a way that you could understand?
8.3
Q96. During the last days of their life, did you feel you had enough time to discuss their care and treatment with healthcare sta?
7.7
Q97. After your relative or friend died, did healthcare sta engage with you in a sensitive manner?
9.0
Q98. Did healthcare sta give you practical information on what to do after your relative or friend died, including information on registering their death?
6.8
Q100. Overall, and taking all services into account, how would you rate the care and support you received?
8.0
49 This does not include 1,296 respondents who selected ‘not applicable, I did not have any contact with healthcare sta’ and 1,116 respondents who selected ‘I did not need help with this’.
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