Findings of the National End of Life Survey | 2023
Examples of comments relating to continuity, availability and responsiveness of care
Q101. Overall, what was good about the care your relative or friend received?
“Her care was at home by family paid carers and with visits from public health nurses and one palliative care nurse on ȴnal days. I couldn’t have wished for better. Her GP was always available.”
“My father died at home aged 93. It was a miracle he got home for the last 2 weeks of his life after 6 weeks in hospital and that was down to the support sta, doctors/nurses in rehab or the incredible home helpers, OC therapist and the PHN/GP, hospice nurses in the last 3 days.”
Q102. Was there anything that could have been improved?
“Communication and support around discharge plan from hospital was very poor. There appeared to be no communication between the various services. This needs to be addressed.”
“Co-ordination between nurses, carers, doctors and consultants. We found this aspect to be scandalous. Nobody knew what the other ‘team’ was doing etc. Dierent sta gave dierent information.”
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