Contents
1. Background and Context
2
2. Introduction
4
2.1 Scope of this guidance document
5
2.2 Who is this document for?
5
2.3 How to use the document
5
2.4 Structure of guidance document
6
3. Five Key Considerations to Inform Good Practice
7
3.1 Recognise that communication is always possible with a person with dementia
7
3.2 Develop knowledge about the progression of dementia and key triggers for end-of-life care discussion
8
3.3 Plan future care to optimise comfort
8
3.4 Promote personhood throughout the person’s journey
9
3.5 Record future wishes when they are expressed.
9
4. Guidance and Resources
10
4.1 Communication skills
10
4.2 Capitalising on informal opportunities
17
4.3 Facilitating discussions
23
4.4 Hosting formal family meetings
27
5. Additional Resources
33
5.1 Understanding the progression of dementia
33
5.2 Factsheet to accompany this guidance document
35
5.3 Leaflet on communicating with a person with dementia
37
6. Appendices 39 Appendix 1: Membership of the Expert Advisory Group and the Project Advisory Group 39 Appendix 2: Methodology 40 Appendix 3: List of submissions received during consultation process 43 7. References 44
Facilitating discussions on future and end-of-life care with a person with dementia
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