Facilitating Discussions...

Section 5

Page 2

FACT SHEET 1 A 1 B

5 Key Considerations to Inform Good Practice 1. Recognise that communication with a person with dementia is always possible. 2. Develop knowledge about the progression of dementia and key triggers for end-of-life discussions. 3. Plan future care to optimise comfort. 4. Promote personhood throughout the person’s journey. 5. Record future wishes when they are expressed.

8 Tips for Effective Communication 1. Adopt a person centred approach to communication. 2. Connect with the person 3. Consider the communication environment. 4. Be aware of your own communication style and approach. 5. Use active listening. 6. Use simple language. 7. Focus on one question at a time. 8. Clarify information and check for understanding.

AFIRM Approach to Active Listening Acknowledge the person’s concerns and fears. Find out what the person knows about their condition. Immediate concerns addressed. Respond to subsequent questions. Meet again or with senior staff to address concerns.

8 Steps for Family Meetings 1. Prepare discussion. 2. Introductions. 3. Determine the family’s knowledge of dementia.

4. Explain about dementia. 5. Allow space for emotions. 6. Discuss care options. 7. Clarify understanding. 8. Reflect and self-care.

“Dementia does not equate to a loss of communication but to a different system of communication” (Bush 2003).

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Facilitating discussions on future and end-of-life care with a person with dementia

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