Section 6
APPENDIX 2
METHODOLOGY
Development of the guidance document
This guidance document was developed using the following steps:
1. The IHF Project Advisory Group established an Expert Advisory Group to develop this guidance document (See appendix 1 for membership of the group). 2. A narrative literature review took place using English language articles selected through a systematic search strategy (see below). Consensus within the group was acheived through a process of reflection based on the experience of the group members in the field. The group identified core themes during this process. 3. Literature review completed based on themes identified in step 2 (see below for details). 4. Collation of key themes to inform the key considerations and the guidance by the Expert Advisory Group. 5. Draft 1 of the guidance document prepared for comment by Expert Advisory Group. 1 6. Draft 2 of the guidance document prepared for external consultation (see Appendix 3 for list of submissions received). 7. Feedback from external consultation to develop final draft. A consultation report was prepared and made available on request.
8.
Final version published.
Literature Review: The literature review informing this document was based on three comprehensive literature searches of journal articles using two online databases. The review included articles published in the last 10 years within peer reviewed journals. They were filtered for relevance by the development team (Carmel Collins, Deirdre Shanagher, Niamh O’Donnell and Joanna Leneillon). A hand search of international and national policy and best practice guidelines which was ongoing throughout the process in order to inform and populate the resources.
1 This group sought the views of Dr Margaret Clifford, Consultant in Palliative Medicine, St Joseph’s Hospice, London. Her suggestions were incorporated into the final document.
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Facilitating discussions on future and end-of-life care with a person with dementia
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