Facilitating Discussions...

Section 7

39. National Health Service. National End of Life Care Programme. Talking about end of life care: right conversations , right people, right time [Internet]. National Health Service. National End of Life Care Programme; 2001. Available from: http://webarchive.nationalarchives.gov.uk/2011021 8140707/http://endoflifecareforadults.nhs.uk/asset s/downloads/TalkingAboutEndOfLifeCare2011012 4.pdf 40. Ellis M, Zeedyk S. Rethinking Communication : The connected baby guide to advanced dementia [Internet]. First edition. Dundee: Suzanne Zeedyk Ltd Publishing; 2014. 64 p. Available from: http://www.connectedbaby.net/product/rethinking- communication-book/ 41. National Health Service. The route to success in end of life care - achieving quality in care homes [Internet]. 2010. Available from: http://www.nhsiq.nhs.uk/resource- search/publications/eolc-rts-care-homes.aspx 42. Kumar C, Kuriakose J. End-of-life care issues in advanced dementia. Ment Health Fam Med. 2013;10(3):129–32. 43. Mitchell S., Teno J., Kiely D., Schafer M., Jones R, Prigerson H, et al. The Clinical Course of Advanced Dementia. N Engl J Med. 2009;361:1529–38. 44. Sutton L, et al. Out of the Shadows: End of Life Care for People with Dementia. National Council for Palliative Care; 2009. 45. Cahill, Suzanne, Diaz-Ponce, A. “I hate having nobody here, I’d like to know where they all are”: Can qualitative research detect differences in Quality of Life among Nursing Home Residents with different levels of Cognitive Impairment? Ageing Ment Health. 2011;15(5):562–72. 46. National Consent Policy [Internet]. HSE; 2013. Available from: http://www.hse.ie/eng/about/Who/qualityandpatien tsafety/National_Consent_Policy/ 47. Clayton JM, Butow P., Tattersall MB. When and How to Initiate Discussion About Prognosis and End-of-Life Issues with Terminally Ill Patients. J Pain Symptom Manage. 2005 Aug;30(2):132–44. 48. Department of Health UK. Capacity, care planning and advance care planning in life limiting illness: A Guide for Health and Social Care Staff [Internet]. NHS Improving Quality; 2014. Available from: http://www.ncpc.org.uk/sites/default/files/ACP_Bo oklet_June_2011.pdf 49. National Health Service, UK. Capacity, care planning and advance care planning in life limiting illness [Internet]. United Kingdom; 2011 [cited 2015 Dec 2]. Available from:

http://www.ncpc.org.uk/sites/default/files/ACP_Bo oklet_June_2011.pdf 50. Murphy J, Oliver T. The use of Talking Mats to support people with dementia and their carers to make decisions together. Health Soc Care Community. 2013;21(2):171–80. 51. Lámh - Communication Augmentation Sign System Ltd. Using Lámh [Internet]. Online; Available from: http://www.lamh.org/communication/using- l%C3%A1mh 52. Commission for Social Care Inspection. See me, not the dementia: Understanding people’s experiences of living in a care home. Newcastle - Upon -Tyne: Commission for Social Care Inspection; 2008. 53. Ryan E, Bannister K, Ann P. The dementia narrative: writing to reclaim social identity. J Aging Stud. 2009;23(3):145–57. 54. Brush J, Sandford J, Fleder H, Bruce M, Calkins M. Evaluating and modifying the communication environment for people with dementia. Perspect Geronology. 16(2):32–40. 55. Stirling University. 10 helpful hints for dementia design at home [Internet]. Stirling: Stirling University Dementia Services Development Centre; 2010. Available from: http://www.dementiashop.co.uk/products/10- helpful-hints-dementia-design-home 56. Torrington J. Lighting for people with dementia. 2007;39(1):81–97. 57. Barnes C, Surr C. Communicating [Internet]. The Alzheimer’s Society; 2012 [cited 2015 Dec 2]. Available from: file:///C:/Users/IHF/Downloads/Communicating_fa ctsheet.pdf 58. Harwood, J. Communicating with Patients who have Dementia [Internet]. Elder Care A Resource for Interprofessional ProviidersArizona Center on Aging; 2013. Available from: http://aging.arizona.edu/sites/default/files/dementia _patients_-_communication.pdf 59. Veselinova C. Influencing communication and interaction in dementia. Nursing & Residential Care. Nurs Resid Care [Internet]. 2014;16(3). Available from: http://www.magonlinelibrary.com/doi/abs/10.1296 8/nrec.2014.16.3.162 60. Jootun D, McGhee G. Effective communication with people who have dementia. Nurs Stand. 2011;25(25):40–7. 61. De Vries K. Communicating with older people with dementia. Nurs Older People. 2013;25(4):30–7.

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Facilitating discussions on future and end-of-life care with a person with dementia

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