NSLHD News July 18

Are you up for a challenge to support world leading research? There’s an opportunity to support

“Mitochondrial disease is no longer considered a rare disease, with one in 200 Australians carrying the gene which increases the risk of developing the neurological disease. “It can be very difficult to diagnose so some patients are mistreated for

research into Mitochondrial Disease – a debilitating and potentially fatal disease that can affect any organ of the body at any age. The Kolling Foundation is joining with ID Events Australia and Be Challenged to host the Beanstalks Team Challenge event at Luna Park on September 19. It will see competing teams work through a fun and interactive virtual reality challenge – The Infinity Loop. Kolling Foundation CEO Gilbert Lorquet said the challenge will give teams the chance to test their leadership and strategic skills, while also supporting innovative research. “We’d love to see teams from across the district enjoy the challenge of competing against each other,” Gilbert said.

This year’s beanstalk challenge willl be a virtual reality Infinity Loop.

years, and not given access to the specialist treatment they require. “The disease can greatly affect energy levels, general function and eventually organ systems fail. “By supporting this event, you’ll be helping the development of more accurate methods of diagnosis and new therapies to treat the disorder.”

Organisers are looking for 50 teams (with five people per team) to participate in the challenge. To register for the Beanstalks Team Challenge visit bit.ly/2WzRYmU You can also email the Kolling Foundation at foundation@ kolling.org.au for more details.

palliative care plans earn tick of approval from community

care closer to their home and loved ones, during difficult and challenging times. “Engaging with community groups such as these on the design of the building is so important and the feedback on the floor plans from members the Friends of Northern Palliative Care and the Inpatient Facility Working Group has been invaluable and greatly appreciated,” she said. Kay Millar, Chair of the Northern Beaches Palliative Care Inpatient Facility Working Group, said it was pleasing to see progress on the building, and that the group’s recommendations on the floor plans had been incorporated, where possible. “This service is something the community has been wanting for a long time so it is great to see the progress being made,” she said. “We look forward to continuing to work with the hospital over the coming months as the building takes shape.” Construction for the 10-bed Palliative Care Unit and 10-bed specialist aged care unit building is currently underway with expected completion by the middle of next year.

Detailed floor plans of Mona Vale Hospital’s new 10-bed Palliative Care Unit and 10-bed Geriatric Evaluation Management Unit have been presented to the Friends of Northern Beaches Palliative Care and the Inpatient Facility Working Group. The revised floor plans were shown by the hospital’s General Manager Jacqui Edgley at a recent meeting and had been updated following input from the groups and the members of the hospital’s volunteer auxiliary. Jacqui said the new 10-bed inpatient palliative care service will enable more people to receive

10 NSLHDNEWS | ISSUE 13| 18 JULY 2019

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