Irish Hospice Foundation Care & Inform
Offer to support family or friends (if the person consents):
“Would you like me to tell (name) what we’ve discussed?” Consider joint as well as separate discussions with the person and their family, once the person has consented. This can help to explore and address different information needs. People can often feel abandoned. It is important to reassure them that you/someone will be there for them throughout their illness. If this is not possible, it is vital that alternative arrangements are made clear:
“We will do what we can to manage your symptoms and link you in with the services that will support you and your family. You will not be alone in this.”
“People vary in how they want to make decisions. Some people want to do this alone; others want to share decision making with their family or doctor. What would you like?” It is important to enable the person to feel in control. Help them to identify where control can be fostered, for example, speaking with family/friends:
Following a conversation make sure you write down what has been discussed and record on that person's file.
Questions in the text adapted from Atul Gawande. (2014). Being Mortal: Medicine and What Matters in the End.
More information and resources about advance care planning, to include the Think Ahead form, FAQs on Advance Planning and legislation as well as guidance documents are available on the Irish Hospice Foundation website: www.hospicefoundation.ie or contact: Deirdre.Shanagher@hospicefoundation.ie
This resource is brought to you by The Irish Hospice Foundation If you would like to support us you can donate at www.hospicefoundation.ie
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