Advocacy
Patients and PRRT with SPARC-EUROPE
Kate Quirk, our patient support co- ordinator took part in the pilot survey which examined the data collected. This will better inform SPARC-Europe's activities to improve policies that boost the awareness and accessibility of PRRT for all NEN cancer patients. Kate said: "Patient involvement, advocacy and feedback is always important in all the surveys we participate in. If you see a call- out for patients to take part, please do respond. We always need to hear your views.".
SPARC is a European political initiative working towards building a comprehensive policy framework for radioligand therapies (RLT), also known to many as peptide receptor radionuclide therapy (PRRT). SPARC will shortly be launching a survey titled: NEN RADAR to gather insights on the understanding and experience of NEN (neuroendocrine neoplasms) cancer patients who undertake PRRT as a treatment option. The survey questions have been carefully crafted by SPARC- Europe's expert working group and cover the topic of: PRRT Experience, Availability and Effects.
You can learn more about SPARC-Europe here https://sparc-europe.com
Midlands NET Service Review Event
Nikie was delighted to represent Neuroendocrine Cancer UK at the Midlands NET service review event where she spoke about the Ideal Pathway.
This insightful day was held in Leicester with participants and speakers from across the region, including the 2 ENETs Centre of Excellence’s specialist teams and referring hospitals, celebrating what works and identifying collaborative initiatives to coordinate and improve neuroendocrine cancer care.
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www.neuroendocrinecancer.org.uk
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