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Autumn Appeal Report 2024
In 2023 we: • Convened a national Metastatic Breast Cancer Data Roundtable leading to the report Time to Count people with Metastatic Breast Cancer – A Way Forward . Around 10,000 people are living with treatable but not curable metastatic breast cancer in Australia, however we don’t know the exact number because they are not counted consistently by our cancer registries. Incomplete data means those with metastatic breast cancer are invisible to health service providers and policymakers. BCNA is calling for increased visibility through routine collecting and reporting of recurrence and stage data to shine a light on the unmet needs of this group. • Led an advocacy campaign for people travelling through airport security wearing a breast prosthesis or compression bra to be treated with dignity and respect. • As part of our Seat at the Table program , we increased the number of trained Consumer Representatives (CRs) - who have a lived experience of breast cancer - to 59. Providing a consumer voice is central to everything we do, and our CRs are at the table with us as we advocate for change in improving access to care, treatment and support for people affected by breast cancer.
Our Consumer Representatives receiving training at the BCNA office in June 2023.
• We continued to be a voice for change through participation at key cancer conferences where we joined with leading local and international cancer experts to advocate for the needs of people with breast cancer. This included delivery of a keynote speech on breast reconstruction at the Royal Australian College of Surgeons Annual Scientific Conference , and BCNA’s consumer voice was heard loud and clear at the Clinical Oncology Society of Australia’s (COSA) 50th Annual Scientific Meeting in November, where four of our trained Consumer Representatives presented alongside clinicians.
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