Letter from the Co-Chairs
For 30 years, the Network of Excellence for ALS (NEALS) has driven ALS clinical research forward and united the community in the effort to advance understanding and treatment of amyotrophic lateral sclerosis (ALS). What began as a small consortium of committed clinicians and scientists grew into a dynamic, global network connecting more than 160 academic sites with people living with ALS, caregivers, researchers, advocacy and government organizations, and industry partners – working together to accelerate progress.
NEALS helped define how ALS clinical research is conducted. From launching the first NIH-funded ALS clinical trial, to developing outcome measures that remain central to trials today, to pioneering open data sharing and patient-centered research education, NEALS consistently advanced the field by bringing people together around a shared purpose. Through innovations in trial design, statistical approaches, decentralized infrastructure, biomarker discovery, and investigator training, NEALS has played a leading role in accelerating therapy development and expanding the capacity and coordination of ALS research.
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