NEALS 30-Year Impact Report

Our Mission Our mission is to accelerate the development of new treatments through innovative research and working collaboratively with people living with ALS and all stakeholders in the ALS research community. NEALS fulfills this mission by serving as a global leader in academic clinical research, working to advance new therapies with speed, innovation, access, and collaboration at the forefront. We unite scientists, clinicians, patients, caregivers, and industry partners to design and support high-quality ALS trials, pioneer new outcome measures and biomarkers, and lead open data-sharing initiatives, accelerating innovation across the field. Through a range of top-tier educational and training programs, NEALS empowers people across the ALS ecosystem, from those living with ALS and their caregivers, to investigators, study teams, and industry partners, to advance the quality, efficiency, and reach of clinical research. For people living with ALS, NEALS offers training and engagement opportunities that build understanding of and support for clinical research. For our member sites, we provide investigator workshops, clinical research staff trainings, outcome measures trainings, and research forums that strengthen trial readiness and excellence. For industry partners, NEALS convenes Scientific Advisory Board meetings and clinical trial design workshops that bring together leading experts to provide guidance, feedback, and shared learning, helping shape the next generation of ALS trials.

By connecting leading researchers, dedicated clinical sites, and people living with ALS, NEALS works to accelerate discovery and expand access to research.

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