The Wireless_July-Aug 2019

THE WIRELESS

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ISSUE JULY - AUGUST 2019

Along came MOllii

Pete Murrell and his partner Julee Redgen in Maroochydore

INSIDE THIS ISSUE:

Words and photo by Russell Phipps

Taking a chance on a MOllii suit has given a new lease of life for a multi gold medalist Sun- shine Coast Para-Athlete. Pete Murrell said winning all his medals paled in comparison com- pared to what he can do, because of MOllii. “Even though I have been in competitions in different parts of the world, I missed the subtle- ties of life,” he said “Now I can go for walks along the beach, potter around the house and play with the dog.” In 1987 Pete was a successful business owner with a passion for Polo Cross, however luck was to deal him a fateful hand. “In a blink of an eye my world changed,” he said. In June that year. Pete was competing in a match when a chance collision had him pinned under two fallen horses. “With major head injuries, a broken back, six ribs and collarbone, I lay in a coma for three

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George of the Olgers

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Two New Homes Open

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Meet Nicky

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Out and About

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NDIS - New Supports

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Noosa Come Together

Continued on page 4

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MANAGEMENT COMMITTEE

Message from the General Manager

PATRON: Barry Charles

PRESIDENT: Bruce Stark

SECRETARY: Faith Baigent

TREASURER: Robert Ellis

MEMBERS: Steve Denman, Allan O'Callaghan, Barry Johnson

GENERAL MANAGER: Kym Chomley

E: secretary@121care.org.au

Our members are all volunteers and are representative of our client base. We appreciate and value their service to 121 Care.

CONTACT US

121 CARE

E: contact@121care.org.au P: (07) 5443 9777

W: www.121care.org.au Facebook: 121careinc

Kym Chomley

GUARDIEN GROUP

Welcome to our new look newsletter! It has been some time since we have been in contact with everyone due to focussing on the roll out and tran- sition of our clients to the National Disability Insurance Scheme which commenced on the Sunshine Coast in January this year. It has certainly been a massive undertaking, despite thinking we were reasonably prepared for it. The client services team have worked very hard to get everyone into the NDIS and they have very delighted with their NDIS plans. Our finance team have also been busy with the huge amount of additional administrative work re- quired by the NDIS. It has been really gratifying to see the number of people who have never been in receipt of funding previously under the State system now being able to access sup- ports, therapies and assistive technology to improve their lives. We have been supporting as many of these people as we can to ensure that they get a good out- come from their planning meeting. Some other exciting news is that we have just opened two Supported Independent Living homes on the Sun- shine Coast under our Guardien Group banner and we are anticipating some further growth in this area this year. The NDIS has been a once in a lifetime and ground breaking change to people with disability and we are so excited and fortunate to be a part of this change.

E: contact@guardien.org M: 0477 771 919

W: www.guardien.org Facebook: Guardien-Group

COLVILLE LODGE

E: pmcburney@121care.org.au M: 0499 887 084

W: www.colvillelodge.org.au Facebook: Colville-Lodge

WINSTON HOUSE

E: manager@winstonhouse.org.au M: 0477 773 067

W: www.colvillelodge.org.au

Facebook: supportedaccommodationspecialists

SUNCOAST INTERGRATED THERAPIES

E: contact@suncoastintegratedtherapies.com.au

W: www.suncoastintegratedtherapies.com.au

M: 0427 127 435 Facebook: MOllii-Sunshine-Coast

EDITORIAL & CONTENT

EDITOR: Sylvia Low Tiffany E: stiffany@121care.com.au P: (07) 5443 9777 Content is the copyright of 121 Care and may be reproduced with permission.

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George of the Olgers

(Above) George with his piece titled “Maccas Church”. (Below), George and the lucky buyer for his painting “Someday”, a reflection of the Olgers, a place that he hopes to visit some day.

“I feel great, I never expected to make that amount of money,” said George Moraitis, a resident of Colville Lodge after he sold four paintings for a princely sum of $1,700. Such was modest George’s reaction when asked about his success at the Third Quarter art gallery art exhibition held in Brisbane recently. “I didn’t think I would sell any at all!” he said matter-of- factly but he did, and at such a good price too, which now means that his dream of going to the Olgers some- day is that much closer. George has lived at Colville for the last 25 years. Depres- sion has had a debilitating impact on his life, but art and painting has provided a creative outlet for him when days are a little grey. What started as “just give it a try”12 years ago, is now a passion. “Art has helped me build my confidence, provided a so- cial environment for me to make friends and helps man- age my depression,” George said. George is well-known locally for his work and in addition to his success at the Third Quarter art gallery, he has exhibited his work also at the Hope Café West End, Art for the Margins, as well as Church in Fortitude Valley. According to Ashley Edwards, Staff Coordinator at Col- ville, the West End Community House has a great social inclusion policy and George’s success at the exhibition is a testament to the ongoing support he gets from them. George attends art classes each Friday at WECH where is

regular participation has seen him form a friendship with art teacher Sue. Sue made the arrangements for George’s paintings to be part of the Third Quarter exhibition. George has shown that with encouragement, support and determination, when talent meets and opportunity, dreams can certainly come true. His success has already put into motion, plans with another friend, Jenny and her husband, to join them when they visit the Olgers in the not too distant future. Jenny, a member of the Rock Community Church is a reg- ular visitor to Colville Lodge, where she and members of her church help residents with advocacy and psycho- social support as well as, assistance with outings and er- rands. George is already working on his next masterpiece and his next adventure.

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2 NEW HOMES OPEN The need for quality supported accommodation has long been an unmet need on the Sunshine Coast according to 121 Support Coordinator, Jo Priestley. they can live as independently as possible you need to live as independently as possible. Contact Jo on 0408 439 703 if you would like to know about accommodation availability.

Continued from front page months.” When he woke, Pete found he could not move the right side of his body. “I didn’t know what had happened to me,” he said. “All I remember was going to sleep the night before the accident.” During months of recuperation and therapy, Pete was taught how to walk and talk. However, this was not enough for an athlete like Pete. And so he began looking around for something to do and stumbled on cycling. Before long, he was at the gym three days a week. “I would do a three hour session followed by a 100km bike ride,” he said. “By the time my three-wheeled bicycle and I retired, we had competed in multiple Para Athletics World Champion- ships and won three gold, and two silver medals.” Settling down in his unit in Maroochydore, surrounded by his memories, Pete was fairly content. But that all changed for the better in August 2018, when MOllii entered his life. “One of my carers at 121 Care said I should try MOllii as they were getting great results from other wearers,” he said. MOllii is a suit that consists of a pair of trousers, a jacket and a detachable control unit. The unit sends electrical signals to any number of the 58 electrodes inside the gar- ment positioned to stimulate 40 key muscles in the body. Pete said he puts the MOllii suit on every morning. Ms Priestley made the comment following the opening of two new residences for supported independent living recently. Located in Caloundra and Currimundi, they each provide accommodation for up to two people. “The transition to NDIS funding has, and will provide an alternative pathway to fill an unmet need to provide peo- ple with quality support within the supported independ- ent living (SIL) model of their choosing,” she said. Operated by the Guardien Group, an associated entity of 121 Care, this is the first of what is envisioned to be many such homes that can be provided in the future. Up until recently Guardien has only operated houses in Redland Bay. The shared house model is designed to nurture, engage, and teach residents skills that will help them get the best out of life. Every support is provided for residents so that

“That’s the best time because the growth hormones that the electrodes needs to target, are at their most active,” Pete said,. Adding that the electrical current stimulates his muscles, making them relax. “I can feel my muscles loosen up, and I am able to move my right side much easier.” Pete’s partner Julee said she has seen a major change in Pete’s quality of life and outlook. “He is far more active and talkative,” she said. “Every day I have noticed, he seems to be getting stronger and more confident.” She said their Cattle Dog Missy was a little apprehensive with Pete’s increased abilities. “When Pete threw the ball for her for the first time with his right hand she refused to get it,” she said. 121 Care general manager Kym Chomley said MOllii was purposely designed for adults and children with neurologi- cal conditions such as multiple sclerosis, cerebral palsy, acquired brain damage, spinal cord injury and stroke. “A few of our clients use MOllii and I am continually amazed at the results,” she said. She said number of clinical studies were ongoing in several countries, led by renown hospitals and doctors, including Monash University. “With success stories like Pete’s, I have complete confi- dence in MOllii and I know it will change many people’s lives,” she said. For information on the MOllii suit or 121 Care’s services P: (07) 5443 9777 or E: contact@suncoastintegratedtherapies.com.au

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Meet Nicky

Hi, my name is Nicky, I am a 36 years-old vibrant young man that resides in a home with two other people. I enjoy going out in a community where I can exercise my goals to live my life to the fullest. One of my goals is to expand my participation in my local neighbourhood, being a valued member of my community, and to explore new and ex- citing places. Some of my favourite interests are boats, water sports and animals. This is Carly, one of my support facilitators. Carly and I were researching a new interest of mine - a remote control boat. This is my story that I will like to share with you. Carly and I created a “vision board” around the subject of remote-control boats, which I can put up in my bedroom to inspire me. I chose some pictures I wanted to use on my board and decorated it and had a talk about what I would like to do on Saturdays. We did some research on where I could purchase my boat and where I can practice using it. I also have a “captain’s

journal” where I can draw and write down my goals for Sat- urdays. I am excited about starting this new hobby. Afterwards, Carly and I went to have morning tea at King’s Country in Thornlands, where I had a coffee and chocolate slice. I also spent some time feeding the animals there. I think the sheep and the white alpaca are my favourite ani- mals to see, and the funniest part is how greedy they are with food. As you can see, I have a strong passion for the animals and will like to volunteer at King Country and help them. My sup- port facilitator is trying to make my dream come true. Nicky is a resident of Guardien Group.

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Out and about

COLVILLE LODGE

COLVILLE LODGE

COLVILLE LODGE

Trung was introverted and non-verbal for a long time. With coaxing and en- couragement from his support work- er, he is emerging from his cocoon. Trung now goes to art group, physio, and has speech therapy. His sister took him to lunch one day and Trung ordered lunch for himself! He was confident in his order and his sister was amazed as he had never done before! His community participation has increased significantly and the joy is evident each time he takes that step out the door. Way to go Trung!

Sang had up until recently, resisted any offer of community participation and had resisted all support offered in that regard. With determined effort of Colville staff, Sang is starting to emerge from his shell and is taking first steps into the community. Here, he and is support worker, Farida, take a day out on a ferry and a visit to the Gallery of Modern Art (GOMA). Sang didn’t go in but...one step at a time.

Mark and his support worker, Lola, visited a museum for the first time recently and what an adventure that was! The visit to Queensland Muse- um had Mark reading the notes for each exhibition and explaining them to Lola. Mark is keen to attend the NASA exhibition next, and we look forward to an update on that adven- ture!

WINSTON HOUSE

COLVILLE LODGE

ability8

There is an app on the market for those on the NDIS plan to help you with maintaining your payroll sys- tem, rosters and notifications of shifts as well as timesheets . It is considered to be a user-friendly platform that can also help you track invoices and claims. The app can be used on Apple and android phones as well as PC using Windows or Mac operating systems. It can also be used on most browsers including Firefox, Safari, Internet Explorer and Chrome. For more information please visit: www.ability8.com.au The information is not an endorse- ment of this product. You are encour- aged to seek independent advice before downloading.

Community support is important for those provide services to people living with disabilities. A support worker at Colville, mobilised her chalk painting group on Facebook who rallied to and brought in a few pieces of furniture with an added touch. Three pieces were donated, each car- rying the personal chalk paint signa- ture of the donor. Deep gratitude and appreciation for the generous dona- tions. It is truly appreciated!

Art is known to have therapeutic effects on people. So for Winston House resident, Monica Schroter, two entries at the recent Gympie District Show Society’s Annual Show and earned herself two special prizes for the her colouring. Congratulations Monica, well deserved!

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NDIS - NEW SUPPORTS

The range of disability supports now available under the NDIS, brings a more meaningful application of the scheme and universality in terms of how NDIS and health services will be working in harmony from hereon. (Stock image)

The NDIS and Health services have been in an arm wrestle over who pays for particular supports pretty since much the Scheme’s inception. The tussle was leaving many Partici- pants and their families in a horrible predicament, unsure of where funding for essential supports would be coming from and if they would be funded at all. But a curtain seems to have been drawn over all the fighting at last Friday’s meeting of COAG’s Disability Reform Council, with the states and Commonwealth government coming to a land- mark agreement on funding responsibilities. As a result, the NDIS will soon be funding a range of new health-related supports. What will the NDIS now be funding? The NDIS will fund health-related supports if they are a regular part of the Participant’s life and a result of their disability. The examples they list include: • Dysphagia Supports • Diabetic Management Supports • Continence Supports • Respiratory Supports • Nutrition Supports • Podiatry and Foot Care Supports • Epilepsy Supports There are some pretty huge wins here for NDIS Partici- pants. Many of these are supports that are essential to keeping people out of hospital and in the community. This

agreement, therefore, will have the long-term double benefit of saving taxpayer money and, most importantly, improving the quality of people’s lives. The list is not an exhaustive one of all health-related dis- ability supports the NDIS will now be funding. The agree- ment suggests that if a support relates to a person’s disa- bility, is a regular part of their daily life and meets the other reasonable and necessary criteria then it should now be funded by the Scheme. The agreement also clarifies that if a person’s disability prevents them from self-managing health conditions, then the NDIS will fund these supports. This is in line with past Administrative Appeals Tribunal (AAT) deci- sions. When will these changes come into effect? Participants can access these supports through their NDIS Plan from 1 October 2019. So put that date in your calendars! (Source: Disability Services Consulting) You can read the complete communique here: Meeting of the COAG Disability Reform Council Communique You can view the range of supports offered here: How the National Disability Scheme (NDIS) and health services work together

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UPCOMING EVENTS

July 24 Stress Down Day (Lifeline) August 20-26 Brain Injury Awareness Week

August 4-10 Homelessness Week (Homelessness Australia) August 7 Finding Homes for People with Disabilities (Gold Coast) August 9 NDIS Kicking Goals Expo (Morayfield) August 12-27 Hearing Awareness Week August 30 Disability and Lifestyle Expo (Sunshine Coast) September 1-30 Sidetember, Royal Rehab and Brain Injury Australia September 3-9 National Stroke Week, Stroke Foundation September 5 Disability Expo (Sunshine Coast) ; Big Day Back, Spinal Cord Injuries Australia October 4-5 Care Expo (Brisbane) October 18 Regional Disability Expo (Toowoomba) November 1-2 Brisbane Disability Expo

Click on link to more information. Click on link to more information.

NOOSA COME TOGETHER The fourth annual Noosa Come Together Festival and Busking Championship was held on 8-9 June. The two-day fete ended with another resounding success. For their hard earned effort, the organising committee raised just more than $20,000 this year, which was pre- sented to 121 Care for distribution to three worthy sporting groups on the Sunshine Coast—Sailability, Riding for the Disabled and Disabled Surfers Association. Since its inaugural festival, the Festival has distributed more than $60,000 to local disability sporting groups. 121 Care general manager, Kym Chomley, said that she is grateful for the continued support from the Festival to- wards programs that would enrich the lives of people living with disability.

ABOUT US

Once upon a time, a small group of people with disabili- ties joined together with a vision for an organisation that would provide the daily supports they wanted and could choose from so that they could live independently. In 1992, 121 Care, an accredited not-for-profit com- menced and in the years since, we have embraced that vision and turned it into a range of support services to people living with disabilities across south-east Queens- land including:

• Transportation • Holiday care • Access to community and social services 121 Care is also an accredited NDIS service provider provid- ing support with:

• Care plan and management • Supported independent living • Community participation • Support coordination • Accommodation Contact us to provide NDIS support services.

• Personal care • Overnight care

• In-home assistance • Meal preparation

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