Cart Wheels Winter 2024-25_HR

Winter 2024-25

A for Meadow bright Family gives back after toddler’s life is saved

future

Know your care options your care options over the holidays holidays INJURIES DON’T HOLD BACK DON’T HOLD BACK football star More NICU options THAN EVER BEFORE

A publication of Norton Children’s and Norton Children’s Hospital Foundation

WHO’S DECKING THE HALLS AT NORTON

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Family : The heart of the holidays and the heart of what we do It’s finally fall, and our favorite time of year is right around the corner! After a long, hot summer, we are ready for the start of our annual holiday fundraising events in the coming weeks. The holidays are a time to cherish family, and in this issue of Cart Wheels, you’ll find several articles about the family-centered focus we’ve recently enhanced. From giving birth

Who’s decking the halls? Celebrity sightings at Norton Children’s Hospital Keep the holidays bright Know where to go for care

CHILDREN’S HOSPITAL?

High school star continues football career Gratitude fuels

in a more homelike setting to offering even more access to critical neonatal intensive care, families can rest assured that high-quality, high-touch, compassionate care is never far away. This year’s Festival of Trees & Lights, Nov. 15 to 17 at Louisville Slugger Field; Snow Ball gala on Nov. 23 at the Omni Louisville Hotel; and Home & BMW Raffle all benefit Norton Children’s neonatal intensive care units. We hope you will come out and not only support a great cause, but also find your holiday spirit! Find details on each event and the raffle inside.

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family to give back Pediatric cancer in the spotlight New medical leader; visit from the governor

E ach year, Norton Children’s Hospital welcomes dozens of special guests who bring smiles to the faces of patients and their families. Plenty of local celebrities make a point to visit, ranging from Kentucky Gov. Andy Beshear to players from the Louisville City and Racing Louisville football clubs. Louisville’s professional soccer teams aren’t the only athletes who regularly stop by. Players from the Louisville Bats and University of Louisville’s men’s and women’s basketball teams also are frequent visitors. Norton Children’s also hosted WWE Tag Team Champions Austin Theory and Grayson Waller and UFC flyweight champion Valentina Shevchenko in June. Along with toys and autographs, guests often will take photos and meet with staff as well. These visits not only brighten the day for patients and staff, but help to create lifelong memories for the kids in Norton Children’s care.

The end of the year also is a time of giving. There’s no doubt you’ll find inspiration in reading about our brave heart patient on the cover, whose family found a beacon of hope in Norton Children’s. In return for our pediatric heart specialists saving this child’s life, her family has given back to help ensure that quality care can remain a beacon of hope for other families for many years to come. We wish you and your family health and happiness this holiday season.

SPECIAL SECTION Having a baby: From delivery to critical care

WWE wrestlers Grayson Waller and Austin Theory along with UFC fighter Valentina Shevchenko visit a patient.

Homelike birthing suites New hospital unit for tiniest babies In my own words 30 days in the NICU

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Diane M. Scardino, FACHE Chief Administrative Officer Norton Children’s Hospital Norton Children’s Medical Center

Susan F. Strack, MBA System Vice President

Lynnie Meyer, R.N., Ed.D., FAHP, CFRE Senior Vice President Chief Development Officer Norton Healthcare and Norton Children’s

Pediatric Services Norton Children’s

Louisville Bats players stop by for a visit.

To learn how you can support patients and their families, visit HelpNortonChildrens.com . Scan the QR code if you’d like to donate an item for a hospitalized child during the holidays or anytime. – Dakota Sherek

Tribute Gifts

Once again, Norton Children’s has been named in U.S. News & World Report’s Best Children’s Hospitals rankings for 2024-25. In addition to being named the top children’s hospital in Kentucky, Norton Children’s was ranked nationally in seven specialties: behavioral health, cancer, diabetes/endocrinology, neurology/ neurosurgery, orthopedics, pulmonology and urology. For more information and specific rankings, visit NortonChildrens.com .

News and Notes

Upcoming Events

These visits not only brighten the day for patients and staff, but help to create lifelong memories for the kids in Norton Children’s care.

The University of Louisville men’s basketball team made a surprise visit.

On the cover: Meadow Boes of Fisherville, Kentucky

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KEEP THE

Overcoming injuries, high school football star continues sports career Isaac “Spike” Sowells Jr.

BRIGHT

Know where to go when the pediatrician’s office is closed D id Santa deliver sniffles with the new bike? Maybe Grandma’s cookies caused a bellyache? Whether it’s a cough or cold, stomach pain or an injury, when you know where to go for the right kind of care, you can get on with your holiday celebrations sooner.

Immediate care/prompt care* Suspected fracture or minor break

Norton Children’s After Hours and sick visit options

Cold or cough Sprain or strain Mild stomach pain Rash

Open on holidays

Norton Children’s After Hours is available at Norton Children’s Medical Group in Frankfort and Shepherdsville. Appointments are available for current and new patients beyond the usual weekday office hours. Your child does not need to be a patient of Norton Children’s to receive care at an after-hours location. In addition, all offices offer same-day sick visit scheduling for current patients. Schedule a visit through your child’s Norton MyChart account.

Virtual visit Cold or cough Nausea, vomiting, diarrhea Sprain or strain Rash

Available 24/7

Emergency room Allergic reaction Animal bite

24/7 Care

Bleeding that won’t stop Cut that needs stitches Suspected major broken bone

*Hours may vary by location.

Severe cut Head injury Severe stomach pain

Scan the QR code to find urgent care options for kids.

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ISAAC SOWELLS JR. CREDITS NORTON CHILDREN’S for helping him recover, take his game to college level

t’s been a long journey for Louisville Male High School football star Isaac Sowells Jr. Known by most as “Spike,” Isaac is among the highest-ranked high school offensive linemen in Kentucky and has been recruited by some of the top college programs in the country. This past summer, Spike announced his decision

“This is the type of injury that can end careers,” Dr. Brey said. “We wanted to do everything we could to get him healed and back to what he loved.” The surgery was a success, and with lots of rehab with Kait and the COOL team, Spike was back on the football field the following season. Unfortunately, toward the end of his freshman season, Spike continued to have patella dislocations. Dr. Brey performed a second surgery to reconstruct the ligament that holds the patella in place. Since the second surgery, Spike has taken his game to the next level with little issue. He continues to consult Dr. Brey and Kait for any medical concerns that pop up.

to play center at North Carolina State University. He also was named a team captain. As he put on his Wolfpack hat in front of family, friends, media and even one of his Norton Children’s surgeons, Spike couldn’t help but reflect on the journey that got him to this point. OVERCOMING INJURIES Ever since middle school, Spike has fought through some

IMPORTANCE OF HAVING A TEAM Entering his senior season, Spike is a leader of his team. “I want to be a guy that my teammates can look up to,” he said. He knows the importance of having a great team, both on and off the field. “Dr. Brey and Kait got me through some very dark times,” Spike said. “Sports injuries, especially when you’re young, are something very hard to go through. I think it’s not talked about as much, but there are times where you feel depressed when you’re not able to move like other people.” Spike was so grateful that he even invited Dr. Brey and Kait to his college signing announcement and

serious injuries. In 2019, he developed Osgood-Schlatter disease, a type of knee pain that most often occurs in athletes during growth spurts, when bones, muscles, tendons and other structures are changing rapidly. That’s when Spike met Jennifer M. Brey, M.D., pediatric sports medicine specialist and orthopedic surgeon with Norton Children’s Orthopedics of Louisville. “Little did I know they would

Spike Sowells with his parents, Isaac Sr. and Frances, Keiyan Sowells and Halani Hobbs

The surgeon is excited to see Spike reach his goals at the next level. “He’s such a good kid,” she said. “He’s polite, very, very smart, and an inspiration for a lot of our younger athletes as well.” Spike will graduate high school in December 2024 and enroll early at North Carolina State. –Joe Hall ❛ ❛ DR. BREY AND KAIT GOT ME THROUGH SOME VERY DARK TIMES. SPORTS INJURIES, ESPECIALLY WHEN YOU’RE YOUNG, ARE SOMETHING VERY HARD TO GO THROUGH. I THINK IT’S NOT TALKED ABOUT AS MUCH, BUT

BEST IN ORTHOPEDIC CARE Ranked in top 50 nationally by U.S. News & World Report

2024-2025 Best Children’s Hospitals With a 125-year presence in Louisville, Norton Children’s is a leader in pediatric care across Kentucky and Southern Indiana, and Norton Children’s Orthopedics of Louisville is the foremost

become family to me,” Spike said about Dr. Brey and the rest of the orthopedic team. The following year, Spike experienced a wrist fracture. The same team evaluated the injury but determined surgery wasn’t needed. He wasn’t so fortunate with the next injury. In 2021, as Spike was getting ready for high school, he was working on some agility drills and slipped, and his leg went backward. He hit the ground in pain and couldn’t get back up. After being taken to Norton Children’s Hospital by ambulance, Spike was diagnosed with a fractured femur that also dislocated his patella. Dr. Brey and physician assistant Kait M. Zagami, PA-C, performed surgery to repair the fracture and stabilize Spike’s leg and knee.

provider of pediatric orthopedic care. Our specialists understand that growing children have their own unique needs, as do their bones and muscles. Whether it’s a broken bone or a condition that will need a lifetime of care, our pediatric orthopedic specialists are fellowship trained and provide specialized care for infants, children and teenagers. Learn more at NortonChildrens.com/Orthopedics .

thanked them in his speech. As Spike saw Dr. Brey before his announcement, he smiled and gave her a big hug. “I’ve seen them [the orthopedics team] more than some people see their families,” he said. Dr. Brey credits Spike’s determination and positive attitude for getting to where he is today. “My job is basically to kind of point him in the right path,” Dr. Brey said. “I can do surgeries, but it’s up to the patient to make sure that they do their rehab. He has always done that. He knew the commitment it was going to take to recover from his injuries, and he was able to do that.”

THERE ARE TIMES WHERE YOU FEEL DEPRESSED WHEN YOU’RE NOT ABLE TO MOVE LIKE OTHER PEOPLE.” –Isaac “Spike” Sowells Jr.

M eadow EmmaLou Boes loves princesses. The 3-year-old is obsessed with Elsa from “Frozen.” Among her growing vocabulary, three of her top words are, “Let it go!” “Meadow lives life at 100%,” said Sarah, Meadow’s mom. “You’d never know she was born with a life-threatening heart condition.” In summer 2022, Sarah and her husband, Ben, were getting ready to welcome their first child. Sarah, a nurse practitioner, was 34 weeks pregnant. A joyous occasion turned stressful when a scan unexpectedly showed a serious issue with Meadow’s heart. She was diagnosed with tetralogy of Fallot with pulmonary atresia, a congenital condition that changes the way blood flows to the lungs and through the heart. Left untreated, the condition is fatal. “My head was exploding,” Sarah said. “Even as a nurse practitioner, it’s a lot to take in really fast, when you’re about to have a baby you thought was normal a week ago. Now we’re looking at a severe congenital heart defect, a lifetime full of surgeries.” She and Ben met the Norton Children’s Heart Institute team, who worked with the Boes family to come up with a plan. “At that visit, one of the first physicians we met told us, ‘Our goal is to become one of the premier pediatric heart programs in the country, and everyone on our team is committed to making that happen,’” Ben said. “We would later learn just how true that statement was.” Meadow was born at 39 weeks and was quickly taken to Norton Children’s Hospital’s neonatal intensive care unit. Doctors immediately started giving Meadow medication to help her heart. This bought time for Bahaaldin Alsoufi, M.D., chief of pediatric cardiothoracic surgery at Norton Children’s Heart Institute, and his team to put in a BTT shunt. The procedure would improve blood flow until Meadow could grow big enough for a full repair. “It went better than anyone could have imagined,” Sarah said. “We were in and out in less than two weeks — that is quick with this type of surgery.” Gratitude fuels family’s legacy gift to Norton Children’s Heart Institute

Giving back The Boes family wants to ensure other children who need heart care have the same experience for decades to come. The family is leaving a $15 million legacy gift to the Norton Children’s Hospital Foundation. The funds will be used to enhance heart care, expand innovative research, and recruit and train best-in-class doctors and other specialists. To celebrate the future gift, Norton Children’s Hospital has named part of the hospital’s second floor the “Norton Children’s Heart Institute Boes Family Congenital Heart Center, in honor of Meadow EmmaLou.” When Sarah brought up the possibility of making a donation, Ben said, “I can’t imagine a more worthy cause.” –Joe Hall

PLANNED GIVING CORNER Appreciated securities

Appreciated securities are financial assets, such as stocks, bonds or mutual funds, that have increased in value since their purchase. Donating these securities can be a highly effective way to support Norton Children’s, as it allows you to avoid capital gains taxes on the appreciated value. This means that the full market value of the securities can go directly to helping children, maximizing the donation. For example, if a donor bought stock for $1,000 and its current value is $5,000, donating the stock directly to Norton Children’s would avoid the capital gains tax on the $4,000 appreciation, allowing the full $5,000 to benefit Norton Children’s. Such contributions can be more impactful than cash donations because they offer a dual benefit: You can deduct the full market value of the securities on your taxes, and Norton Children’s receives a larger donation. For the Norton Children’s Hospital Foundation, these gifts can significantly enhance our ability to fund critical programs, purchase new equipment and expand services. Donating appreciated securities allows you to support the causes near and dear to you, while making the most of your investments. To learn more, visit NortonPlannedGiving.com or call (502) 420-4299 .

Ben, Meadow and Sarah Boes

A difficult holiday The hope was the shunt would provide the necessary source of blood flow to the lungs until Meadow was 6 to 8 months old. She’d then be big enough for open heart surgery to fix her heart and install a pulmonary valve. But Meadow’s heart couldn’t wait that long. Around Thanksgiving, Meadow’s home oxygen monitor started intermittently giving low readings. Mildly concerned, Sarah consulted with Edward S. Kim, M.D., pediatric interventional cardiologist with Norton Children’s Heart Institute. “Dr. Kim told us, ‘I just don’t feel good about it. Why don’t you come in just in case,’” Sarah said. Tests showed the shunt had become less effective. Meadow needed open heart surgery, quickly. Surgery was scheduled for Dec. 5. Not your typical tetralogy of Fallot case “We thought, ‘We’ll be out of here by Christmas. We prepared for this,’” Sarah said. But Meadow’s heart had a few more curveballs in store. The surgery was successful, but Meadow developed a type of irregular heartbeat not uncommon for patients with her heart diagnosis. That also seemed to affect her blood pressure and cardiovascular function.

The heart team called Dr. Alsoufi at 2 a.m. As it turns out, he had been up all night monitoring Meadow’s condition remotely from home and was already on his way back to the hospital. “Even after being in surgery all day, he had kept an eye on her through the night, which we really appreciated,” Ben said. Dr. Alsoufi reopened Meadow’s chest, and her condition soon stabilized. A decision was made to leave the incision open. This meant that Meadow had to be sedated and on a ventilator. As Meadow’s condition improved, the chest was closed again. Sarah and Ben got to hold their daughter again. It was Christmas Eve. “She smiled for the first time since surgery,” Sarah said. “We could see the light at the end of a tunnel.” Since then, Meadow continues to grow and hasn’t yet needed additional surgeries. ❛ ❛ BECAUSE OF NORTON CHILDREN’S, OUR DAUGHTER IS ALIVE TODAY. THEY’RE DOING THINGS NOT EVERYBODY ELSE IS DOING. THAT’S SOMETHING THAT I WANT TO SUPPORT.” –Sarah Boes

SPECIAL SECTION Having a baby: From delivery to when critical care is needed

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PEDIATRIC CANCER

Almost like HOME New birthing suites offer more options and amenities

in the spotlight I n August 2024, Michael J. Ferguson, M.D. , joined Norton Children’s Cancer Institute as its new chief. He also serves as division chief of the University of Louisville School of Medicine Department of Pediatrics Division of Hematology, Oncology and Stem Cell Transplantation. Dr. Ferguson leads Norton Children’s team of physicians and staff dedicated to treating pediatric cancer and blood disorders throughout the region. He also is tasked with leading the vision for researching, developing and providing access to new treatments for pediatric cancer. “I’m honored and humbled to lead the hematology/oncology team at Norton Children’s and the UofL Division of Hematology, Oncology and Stem Cell Transplantation,” Dr. Ferguson said. “This talented staff helped transform Norton Children’s into a shining beacon of hope for so many patients battling blood disorders and cancer. There’s an incredible opportunity to grow our research, open cutting-edge clinical trials and build more specialty clinics to meet the needs of the most complex patients. I’m excited and ready to help make Norton Children’s a national destination for treating blood disorders and cancer.” Dr. Ferguson comes to Norton Children’s from Riley Children’s Health in Indianapolis, Indiana, where he specialized in pediatric hematology/oncology. He also was involved in research on discovering new treatments for sarcomas, a group of cancers that begin in the bones and soft tissue. New medical leader joins Norton Children’s, governor visits hospital

F amilies planning to welcome a baby at Norton Women’s & Children’s Hospital now have another option for their childbirth experience in two newly renovated labor and delivery rooms. The rooms offer a more homelike setting and are ideal for a natural or midwife-assisted delivery, as well as for those who may be expecting the loss of their infant. The $266,000 project was funded through the Norton Healthcare Foundation with support from donors, including the Merrilee Kullman Living Trust. “We know that many patients would like a more holistic experience for childbirth — but with the safety net of a hospital,” said Gigi L. Girard, M.D., OB/GYN and executive medical director of women’s services for Norton Medical Group. “Helping make childbirth more of an experience as opposed to a hospital stay is very important to us.” These new rooms offer additional space for a family as well as more natural light, enhancing that experience. They are available to anyone coming to deliver at the hospital on a first-come, first- served basis. All of the hospital’s 19 labor and delivery rooms offer natural childbirth options and other services, including availability of a labor tub, birthing balls, birthing stools, nitrous oxide for pain management, showers and wireless monitors that allow a patient to move around more freely during labor. The hospital has board-certified lactation consultants, including one dedicated to labor and delivery to help patients begin breastfeeding within one hour after birth. “We’re excited to bring this new option to patients and are grateful to the donors who have made it possible,” said Lynnie Meyer, R.N., Ed.D., FAHP, CFRE, senior vice president and chief development officer, Norton Healthcare. “Just imagine the number of new families who will be touched by these spaces and how it will help them welcome their new little ones into the world.” –Joyce Retz

A homelike birthing suite at Norton Women’s & Children’s Hospital

Great care at every step of the way Giving baby the best start at life begins before delivery. With more than 25 locations, including a new office opening soon at Norton West Louisville Hospital, high-quality pregnancy care in Greater Louisville and Southern Indiana is never far away. And Norton Women’s Care offers free prenatal classes via Zoom no matter where you are. While most deliveries are uncomplicated, Norton Women’s Care also specializes in complex pregnancies and deliveries. Specialists with Norton Children’s Maternal-Fetal Medicine offer high-risk pregnancy care not only in Louisville, but throughout Kentucky and through telehealth technology in rural areas.

Governor recognizes Childhood Cancer Awareness Month On Sept. 11, 2024, Kentucky Gov. Andy Beshear met Dr. Ferguson for a visit with pediatric cancer patients at Norton Children’s Hospital. His visit affirmed the commonwealth’s commitment to funding innovative pediatric cancer treatments, research and development. Patients’ families, cancer survivors, advocates and health care professionals also joined the leaders as Gov. Beshear signed a proclamation declaring September as Childhood Cancer Awareness Month. Thank you, Gov. Beshear, for your time and commitment to helping Norton Children’s fight childhood cancer. –Jon Redmon

Norton Women’s Care has been recognized as High Performing in Adult Maternity Care (Uncomplicated Pregnancy) by U.S. News & World Report for three consecutive years. It is the only provider in Kentucky to receive the award all three years, and the only one in Louisville to receive it for 2023–2024.

SUPPORT CHILDHOOD CANCER ADVANCEMENTS The Norton Children’s Hospital Foundation raises funds exclusively for Norton Children’s pediatric facilities and services to support programs, equipment, new technologies, clinical research, child advocacy and health education for patients, families, medical staff and the community.

NICUs are a safe backup for peace of mind

Norton Children’s is ranked in the top 50 nationally for cancer care by U.S. News & World Report’s Best Children’s Hospitals rankings for 2024-2025.

Norton Children’s Hospital serves all families regardless of their ability to pay. As part of a not-for-profit organization, Norton Children’s facilities rely on the generosity of the community to help fulfill our mission to provide for the physical and emotional health of children, from birth to adulthood. It takes the generosity of everyone in the community to enable Norton Children’s to be here for all children when they need us. Visit HelpNortonChildrens.com for ways you can help.

A Level IV neonatal intensive care unit (NICU) at Norton Children’s Hospital offers the highest level of care for critically ill and premature babies. A Level III NICU at Norton Women’s & Children’s Hospital and a Level II NICU at Norton Clark Hospital mean these tiny patients can quickly be transported to high-level neonatal care at a moment’s notice.

SPECIAL SECTION Having a baby: From delivery to when critical care is needed

Paducah, Kentucky. Austin had to leave the hospital for days at a time to work, while Jillian stayed in Louisville with Tate and Tripp. “Everybody asked, ‘Are you going to transfer them back home if you can?’ I didn’t see a point in it. They were getting the best care they can possibly get at Norton Children’s,” Austin said. “So why take them away from it? It’s a three-hour drive, but it’s worth it.” “When a baby is born that premature, anatomy is formed but not completely developed,” Mia said. “Their heads are premature. Their stomachs are premature; their lungs are premature — so we have to support them as they grow. That’s what’s so important. That’s why these patients are placed in incubators and put on a ventilators, and given so many extra supports.” The TBU has 15 beds, and in its first month it saw about 30 patients — Tate and Tripp being two of the first. Through Norton Children’s care, they continued to grow and develop, and went home in May. “The tiny baby unit is a blessing for anyone in that type of situation. The staff is phenomenal at what they do,” Austin said. “They did exactly what they needed to do to make Tate and Tripp strong, independent babies so we could take them home — and that is amazing. We are so thankful for that.” “Everybody in this unit is dedicated to this. It took a team of providers, nurses, respiratory therapists, pharmacists and nutritionists working together to bring this vision to reality, and I’m super proud of where we are today,” Mia said. “It’s going to be tremendous for the babies and their families. And that’s the focus.” –Dakota Sherek

New mom Jillian Myers with her newborn twins

Austin and Jillian Myers holding Tate (left) and Tripp (right)

New hospital unit for tiniest babies puts parents at ease Meet twin boys who are among its first patients

the very best for all babies

Premature babies are our most vulnerable patients. They deserve the very best care available — no matter where they are. Now that Norton Clark Hospital’s Level II NICU has joined the Norton Children’s family, we’re creating a vision to expand the Jeffersonville, Indiana-based unit and offer a developmental care model that elevates the level of care to that of Louisville’s two Norton Children’s NICUs. Norton Children’s NICUs work together to provide the right level of care at the right time for babies while maintaining a level of trust that is a necessity when caring for these tiny patients and their families. With an expansion of services at the Norton Clark location, Southern Indiana families have more options to stay close to home while their babies are in the NICU. How you can help Norton Children’s NICUs are part of the “Just Imagine” campaign, a visionary journey that will help bring better health to children throughout Kentucky, Southern Indiana and beyond. Just imagine what your help can do. Visit JustImagineCampaign.com .

ecoming a first-time parent can be nerve-wracking — especially when that day comes much sooner than expected. “It’s been a roller coaster,” said Austin Myers. Austin and wife Jillian’s identical twin sons, Tate and Tripp Myers, were born premature at 26 weeks,

beds and making it feel smaller,” said Mia Coulter-Nellums, R.N., nurse manager of the Norton Children’s Hospital NICU. “For our staff, our providers and our families — because the sheer size alone can be overwhelming.” From that research, Mia was inspired to start the TBU within the NICU. The specialized unit is staffed by nurses who have gone through additional education and training to care for premature babies. “The care for patients of that size is so specialized; this really provides the additional expertise that is needed for that patient population,” Mia said. “The nurses trained for the TBU care for those babies every day. This allows families to get to know the nurses, and the nurses get to know the babies and learn what is normal for each baby. That familiarity can help nurses spot subtle changes or abnormalities more quickly than someone who comes in and is not as familiar with that baby.” The core group of highly trained staff members ultimately provide an additional comfort for parents, especially for the Myers family of

six days. Each weighed under 2 pounds. “When they come out and they’re 1 pound, 11 ounces, you don’t really know what they need,” Austin said. “But at Norton Children’s tiny baby unit, they know exactly what they need to be doing, and it’s great.” The tiny baby unit (TBU) opened in April 2024. It’s a dedicated section of the Norton Children’s Hospital neonatal intensive care unit (NICU). The TBU is specifically for babies who weigh 2.75 pounds or less, and typically these babies are born at 28 weeks or earlier. A usual pregnancy is about 40 weeks. “The concept of the tiny baby unit originated from research I did several years ago about taking a large NICU such as ours at 101

Left to right, Tate and Tripp Myers

In my own words 30 days in the NICU SPECIAL SECTION Having a baby: From delivery to when critical care is needed An honest telling of the dark days and bright moments of joy

I would receive texts from nurses with a picture of William saying, “Good morning, Mom”; the music therapist would show me how to bond through song and touch; and the many specialists took the time to explain and re-explain the same information over and over again. The smiling faces and reassuring touches, the resources provided and the willingness to answer our thousands of questions put our minds at ease. We knew William was where he needed to be, getting the best care possible. Having a baby in the NICU is an isolating experience. The presence of nurses, doctors and other staff who understand your journey when friends and family may not is incredibly comforting and helpful. They get what you’re dealing with when your usual community of support may not — the daily frustrations and small joys over an ounce gained, a poopy diaper or a finished bottle. Having those people around to celebrate and cry with you means more than we can put into words. Having a baby in the NICU also robs you of a lot of the joy you anticipated from the moment you found out you were pregnant. The moment unspent that I missed the most was having my then 2-year-old come to the hospital to meet her little brother. Lucy waited at home for her brother for 30 days. The most precious video to us is when we came out of the NICU doors and Lucy was waiting in the lobby with a bunny lovey for when she could finally meet her brother. The moment was not what I envisioned, but it was perfect. William left the NICU at 1 month old, 4 pounds, 15 ounces. When you leave the NICU, doctors and nurses reiterate over and over just how vulnerable your little 5-pound baby is. On Sept. 11, two weeks after our discharge from the NICU, William was rushed to Norton Children’s Hospital via the “Just for Kids” Transport Team. He had a simple cold, but his tiny body could not fight it and he kept turning blue when he was just too tired to breathe. Over the course of the next three weeks, William would require physical stimulation, tapping his chest, and shaking his arms and legs to keep him breathing on his own. On his second night in the hospital, William required resuscitation, signaling he was too weak to breathe on his own, and he was intubated. He remained on a ventilator for nine long days. We waited and hoped each day he would show signs of progress, but all the worst-case scenarios played out. He was in the hospital for 27 days. William came home weaning off morphine and struggling with feeding. He had to relearn how to eat with the help of speech therapists and lactation consultants. He weighed 5 pounds when he was admitted and 5 pounds when we were discharged three weeks later. I felt discouraged but focused on celebrating that, through all of it, he maintained his body weight. Today, William is 8 years old, opinionated, funny and full of energy. He loves his big sister, Lucy, now 10; and baby brother, Harvey, age 3. William loves playing basketball, swimming, music, riding his bike and being outside exploring. We continue to work on his growth with Dr. Kupper Wintergerst at Norton Children’s Endocrinology and are forever grateful for all the doctors who have and continue to be a part of William’s story. –Lee Receveur

A fter an easy, full-term pregnancy and a quick delivery with our first child, my husband, John, and I were excited to find out we were expecting again. We looked forward to our 20-week appointment and gender reveal, not-so-secretly hoping for a boy to accompany our 1-year-old daughter, Lucy. The joy of learning we were in fact expecting our son, William,

At 8:08 p.m., William was born at 3 pounds, 6 ounces. John and I cheered when we heard his weight because an ultrasound that morning estimated he was only 2 pounds, 8 ounces. I think everyone in the room thought we were nuts cheering about a 3-pound baby! Our neonatologist, Dr. Jonathan Cohen, brought William close to my face so I could meet him. After a few moments

was quickly followed by concern when his anatomy scan showed some concerns. The emotional roller coaster of the day was a lot to process, and we realized the pregnancy we were so excited for was going to be far from “normal.” Genetic testing revealed no chromosomal abnormalities, but biweekly ultrasounds at Norton Children’s Maternal-Fetal Medicine continued to show William was growing two weeks behind without explanation.

with me, he was taken to his first home, the Norton Women’s & Children’s Hospital neonatal intensive care unit (NICU). HELLP syndrome continued to cause complications for me over the next 24 hours. My husband and our parents sent me pictures of William and the NICU around him: his name on the wall, his isolette, the little “Snoopy” goggles he wore under the blue lights. After 26 hours, my nurses felt I was stable enough to go to the NICU to see William and hold him for the first time. He was so tiny and fit perfectly on my chest inside my shirt. The first moments holding him weren’t the same sweetness I had known with my first

By 30 weeks, I was on strict bed rest in hopes of maximizing the baby’s access to nutrients to grow, grow, grow. At 33 weeks, I was admitted to the Norton Women’s & Children’s Hospital antepartum unit, where I would stay until delivery. The hope was to get to 35 weeks. HELLP syndrome had other plans On the evening of July 25, 2016, I began to experience pain under my ribcage, which I learned from frantic nurses was my liver swelling. HELLP syndrome, a life-threatening pregnancy complication considered to be a variant of preeclampsia, had developed quickly. With my blood pressure skyrocketing, I was rushed to the operating room. Baby boy was coming at 34 weeks and 1 day via emergency C-section. As this year’s Snow Ball honorary chairs, the Receveurs are sharing their NICU story in hopes of raising funds to ensure the same lifesaving care they received in the NICU remains available. The annual black-tie gala on Nov. 23 benefits Norton Children’s NICUs. Here are more ways you can support NICU care this holiday season: Home & BMW Raffle Win a new home in Norton Commons valued at over $900,000 or a 2025 BMW X1 plus $10,000 — or both! Tickets are $100 and only 18,000 will be sold. Learn more at HomeAndBMWRaffle.com .

baby, though I loved this baby just as much. Holding his tiny form, I was filled with dread that I had no idea how to care for him. We took a few pictures and I handed him to the NICU nurse to put him back in his isolette. The moment was overwhelming. I felt a pressure to act happy and relieved, but was terrified of what might lay ahead. The support we received from the NICU nurses, chaplains, therapists and neonatologists are the reason we look back on our 30-day NICU journey in a positive light. The staff at Norton Women’s & Children’s Hospital were so talented, attentive and caring, we knew it was always OK to be home with our daughter and to leave William in their hands.

THIS HOLIDAY SEASON, GIVE TO LIFESAVING NICU CARE Festival of Trees & Lights Nov. 15 to 17 • Louisville Slugger Field

Make holiday memories with your family at the annual Festival of Trees & Lights. Marvel at beautifully decorated trees, wreaths and décor — all for sale to raise funds for the Norton Children’s NICUs. Photos with Santa, children’s crafts, ride-on train, holiday entertainment and Hanukkah activities are free with admission. Stop by the Sweet Shop, Very Merry Market and outdoor Elf Town activities. Learn more at FestivalOfTreesAndLights.org .

Lee, William, Lucy, Harvey and John Receveur

CART WHEELS TRIBUTE GIFTS

TRIBUTE GIFTS CART WHEELS

Gifts to the Norton Children’s Hospital Foundation help Norton Children’s Hospital and its sister facilities

Joshua McPheeters Anonymous

John H. & Terry Meyer Joyce A. Meyer Kip & Allison Meyer Lynnie Meyer Robert & Susan Meyer Teresa Meyer Robert & Patricia Moses James & Donna Mudd Gouverneur H. Nixon Jr. Edie Nixon David & Judy Ann O’Toole Past Presidents of The Fillies Inc.

Eugene Ray Harper Sr. Eddie & Beatrice Cooper Farrell & Reba Costello Joe Costello Goad Funeral Home Birdie Dell Hall Michael & Vickie Harper George & Twyla Labadie Virginia Meador Clifford & Monta Oliver Tracy & Darcy Oliver Eddie & Regina Rich Charles Lee Wagoner

Matthew Chapman Diana Henson

Barbara Ann Parke Tracy Stuart Allen Sonya Avery Ronald G. Basham & Sandra G. Nasief John Burke Kenneth & Laura Graven Pamela S. Hall Lawrence & Vanessa Jones Sandra G. Nasief Carol & Howard O’Koon

Mary Beth Ratliff Donna Pope

Richard “Ricky” Moody Jr. Shirley Karrick

The individuals in bold were recognized through tribute gifts to the Norton Children’s Hospital Foundation from May 1 to Aug. 31, 2024. Amari’s Bat Mitzvah Mr. & Mrs. Joe Wolf

Leonard W. Meyer Jr. Anonymous Ceal Barry Todd & Rose Mary Beckwith Ken & Mary Lynn Bobzien Kimberly A. Boland & Conor O’Driscoll Catherine Brown John Burke Steven & Anne Cannon Dianne Carli Betty Carney John & Becky Carney Clarice Casper Sharon R. Ciacio Helen R. Coffey Greg & Susan Cohen Craig & Rebecca Collins John & Jayne Combs Robert & Susan Davis Stephanie Davidson Bill & Trish Deatrick Susan Donovan Emily R. Felhoelter Adam & Kasey Fields Katherine A. Ford Connie & Alan Fowler Sandra A. Frazier Judy & James Gates Kathy Hayden Deborah Held Sally Hillerich Dianne Hutcherson Six & Lena Iwu Jim G. James & Elizabeth A. Sekul Kenneth & Sheila Kaelin Timothy S. Kaelin Jim & Jeanette Kays John Kessler Helen McGee King Greg & Elizabeth Klem Jay & Karen Klempner Karen Knight Diane Kurtz Kathy Leah The Lewis Bear Co. Beth Long Kay Madrick Michael & Aneira Mardis Anthony & Carmen Mathis Dana Lynn Matukas Mary Lou Mayhall The McMahan Group Jennifer & Ryan Metro The Meyer Cousins Howard & Marlene Meyer

Dr. Joshua Choo Cathy Hinko

Pat, Ed & Ethel Read Thomas E. Read

Mason Cooper Moore Michael & Diana Hammers

Eleanor S. Collins Mary Lou Meyer

Lincoln Reece Melinda M. Marks

Bud Newton & Tracy Adam Newton Wanda Newton Wendy Novak Harry & Jean Burn The Community Foundation of Louisville Douglas A. Hirsch & Holly S. Andersen Family Foundation Jeffrey & Beth Henderson Carl Martignetti Priscilla Miller Gregory & Alex Mondre Musselman Family Foundation Raether Family Charitable Trust Don & Charlene Siegrist Barry & Beth Storey Nursing Staff in the Pediatric Intensive Care Unit Anonymous

Dean Corbett and His Works George & Beverly Santamouris

Dr. George C. Rodgers Jr. Robert & Susan Davis

Kathryn Wagoner Ralph M. Wilson

Anastacia Granholm’s Graduation Margaret S. Granholm

Leo Paul Curry Sr. Brenda Kessler

Troy D. Rogers Annette R. Lavender

Pat’s Steakhouse & Pat Francis Family Jane P. Queenan Janet Reddington Marty Riehl Tonii & Martha Rizzo Paulette Roberson William & Mary Roby Karl & Nan Roth Cheryl Rumpke Diane Scardino Lori K. Scott Mary Jane Shannon Robert Sheehan

Sandra Kay “Sandy” Hill Richard L. Hill

David Christopher Utz Chris E. & Elizabeth A. Utz

Jason Robert Curtsinger Kim Higgins

Jill Ryland David & Judith Mattingly

Julie Anderson Ocean Soul

Trooper Walter Hogan, Post 3 Stephen Knight

Lillian Alice Nickell Walker Amy Wiles

Laura Day William & Connie Day

Charles F. Schaftlein Deborah Fox

Jerry V. Arthur Richard Jenkins

Brandon & Susan Warren Patricia Wrege

Daryl & Adam Hyatt Doris M. Hyatt

Lisa Gay Delarosa Norma J. Bonza

Regan Kathleen Schott & David Schott Norma Kendall

Erle H. Austin III, M.D., & Scott D. Austin Todd A. & Lee M. Johnson Ezrah Aaron Charles Alexander Barnes Milessa Barnes

Leonard Burns Webb Ronald Christensen Kimberly Cook Joan Criswell Paula DeBoor Daniel Featherston Gail Hart Betty Hoopes Dena Lawing Terry Quarles Tracy Webb Eleanor Mae Welch William Rudey

Lindsey Johnson Calvin Miles

James “Jim” Thomas Eaton YouthBridge Community Foundation

Herman & Selma Schwartz Donald & Ann Schwartz

Scarlett & Jack Shine Paul V. & Cindi Shrader Heather & Nicholas Singleton Leslie & John L. Smart Terry & Deborah Spalding Mark & Nancy Spivey S.J. Stallings Jr. Betty & Don Stemler Richard & Mary Burke Stephens Steven Vanover Foundation Jennifer Stith Mary Osborne Strubel Mark & Tammy Switow Rebecca A. Terry, M.D. Kimberly D. Tharp-Barrie & Jon A. Barrie Treasure Chest TWIGS of Norton Children’s Hospital Stephanie & Alex Ubelhart Jane Walsh Mary Ann & Rick Watkins David & Joan Winkler Bert Wolf Grace Wooding Hugh & Kathleen Wright JoAnn & Amos Zimlich Candace Zuege Barbara Zwischenberger Rebecca Jean Miller Robin Johnsen Purdue Federal Credit Union Jackie Surface Susan Sweitzer

Cindy Jones Jim Jones

Dalton Howard Ferguson Bennie C. Stephens

Waynette Scott Stephen & Janet Dunn Jared Ebelhar Sterling Thompson Co. LLC

Jana Oliver Dr. & Mrs. Stephen P. Wright

Paul “Butch” Barrick Mike Keefe

Augustus “Gus” Elliot Joubert Anonymous Mike & Judy Chandler Will Conn Taylor Cowan

Luke Forbes Denise Lawson Forbes Workday Co.

R.W. Oliver Joy Cowan George & Jeannie Croft Joe & Billie Farless Reed & Joyce Franklin Ray & Kaye Mitchell Douglas & Beverly Morgan Doug & Kaye Phelps Stephen & Glenna Rowland Mr. & Mrs. Roger D. Rushing Trice Hughes Inc. Michael Papasidero Jr. to Commemorate Receipt of His Ph.D. in Nursing Studies Jane Hartman Marjorie Pinnegar Byron & Gail Pool

Dr. David Wayne Baston Milton Price

Joyce Bonta Simpson Ann Arnett

Eamon Charles Goodrich Barbara Charske Rebecca Finlay Jay & Michelle Goodrich Rajiv Sampath Thomas Stander Michael Stock Rebecca Strang Otto & Candace Takacs Russ Ward

Mary Belle Beckman Macjets Evans Family Foundation Mary Patricia “Pat” Beckmann Janet Hardy

Anuschka Krysiak Morgon Newquist

Ann Terry Spragens Amy Bland Lillian Brewer John & Janet Mattingly Stanna Page Boyd & Sally Parke David & Kelly Pensol George Spragens Margaret Spragens

David Wells Timothy & Donna Hall

Daniel Pierce Jennifer Vargo

Walker Cole Womack Jim & Nancy Pippin Darrell & Vicki Reed

Bertha Marx Marlene M. Ornstein

Mary Lou Bell Barbara Green

Tyler Robert Mason Robert & Karen Adams

Jeffrey B. Young Samuel J. Young III

Nicole Grass Jim & Sheila Grass

Jennah Paige Blair Judy Blair

Lloyd & Paula McCollum Matthew & Christi Pike

Charles Mark Stewart Malory Harley

Thomas F. Hagerty Mary H. Wayne

Beverly S. Brooks Veronica Ransom

McCoy/Caldwell Team USTA Kentucky

Jan Sullivan, M.D. Shane & Howard J. Shaps

Monica & Gerald Papineau Anonymous

Judy Sullivan Hammonds Denny & Carolyn Crisp

Frederick A. Bryant Sandra Miller

John Michael “Mike” McGraw Jr. Jessica Alexander

Quiney Nelson Sweatt Byron Nelson

Elden & Bryce Platenberg Marie Platenberg

Sean & Amanda Hans Dina & Tim Hans

Carleen “Sammie” Carver Anonymous

Adin Tapp Penelope Tolle

Charlotte Prussian Lou & Paula Glazier

Owen Frederick McMasters Wilma Goebel

Carol Tinkle David Doehnert

Patrick Dylon Purcell Becky Purcell

To make a tribute gift, return the envelope enclosed in this issue of Cart Wheels or visit HelpNortonChildrens.com . You also may contact the Norton Children’s Hospital Foundation at (502) 420-4299 . Efforts have been made to include all tribute gifts. If a name was overlooked or printed incorrectly, please accept our apologies. You are invited to contact us to correct the error: Norton Children’s Hospital Foundation, 4965 U.S. Highway 42, Suite 100, Louisville, KY 40222, (502) 420-4299 or foundations@nortonhealthcare.org.

Tributes make wonderful gifts for special occasions, such as: • In recognition of someone’s anniversary or marriage • In honor of a birthday, promotion or other event • In recognition of the birth of a baby

CART WHEELS

NEWS AND NOTES

UPCOMING EVENTS

For more information on events listed below, call (502) 420-4299 or visit HelpNortonChildrens.com .

BOARD OF TRUSTEES Chair Marita Willis President, Community Engagement Community Ventures Vice Co-chair Ashley Novak Butler Executive Director, Novak Family Foundation Vice Co-chair Mark Prussian Chief Executive Officer, The Eye Care Institute Secretary Tonii Rizzo Retired President, Trinity Consulting Services Treasurer Mitchel T. Denham McBrayer PLLC Yolanda Acosta Chief Financial Officer, La Rosa de Oro Bakery Matthew Allen Wealth Management Adviser, Northwestern Mutual Terrian Barnes Founder, Fe-smart LLC Ryan Bridgeman President and Owner, RJE LLC Kristina Chiu Vice President, Strategy & Product Development Humana Felisha Dowdy Vice President, Private Wealth Relationship Manager Paducah Bank – Louisville Office Bruce Dudley Partner, Wyatt, Tarrant & Combs LLP William “Bill” Ehrig Retired Senior Director Government & Internal Affairs, Yum! Brands H. Clay Hunt First Vice President Advisory & Transaction Services, CBRE Mimi Hwang Director of Operations, Hwang’s Martial Arts Commercial and Residential Realtor Ignite Property Group of Semonin Realtors Dana Johnson Senior Director of Diversity, Equity & Inclusion Greater Louisville Inc. Andrew Koon Sales Team Lead, Advanced Business Solutions Dr. Mark Lynn President & CEO, Dr. Mark Lynn & Associates Rachel Miles-Merrick Civic Volunteer Melanie Minteer, LMFT Marriage and Family Therapist Mary Newell Director of Brand Marketing, Texas Roadhouse and Bubba’s 33 Dee Orendorf President, TWIGS of Norton Children’s Hospital Akure Ahaghotu Paradis Global Litigation & Investigations, GE Aerospace David Parrott Chief Financial Officer, UPS Airlines Mari-Elise Paul Owner, Ramage Company G. Hunt Rounsavall Jr. Attorney, Rounsavall Title Group Christine Schneider President, Norton Children’s Hospital Auxiliary Bill Taylor Retired Executive, UPS John Thurman Greater Louisville Market President Truist Financial Corp. Eric Weihe Senior Counsel, Litigation for PPL Services Corp./LG&E and K.U. Lynnie Meyer, R.N., Ed.D., FAHP, CFRE Senior Vice President Chief Development Officer, Norton Healthcare and Norton Children’s Attorney, McBrayer PLLC Izmene Peredo Martinez Founder & Co-owner, Con Huevos David Ramage

Norton West Louisville Hospital to offer pediatric specialists

NOVEMBER

Prescription Take Back Day Hosted by Norton Children’s Prevention & Wellness. Dispose of your expired and unneeded medications, patches, ointments and more. Get a free medication lock bag (while supplies last). For time and location, email NCPW@nortonhealthcare.org or call (502) 629-7358 . Snow Ball , 6 p.m. to midnight, Omni Louisville Hotel. This unforgettable black-tie gala, presented by Konica Minolta, features a silent auction, elegant dinner, live entertainment and dancing amid a winter wonderland. Details and tickets at NortonChildrensSnowBall.com . Festival of Trees & Lights , Louisville Slugger Field. Marvel at beautifully decorated trees, wreaths and décor available for sale to raise funds for Norton Children’s Hospital. Photos with Santa, children’s crafts, train rides, holiday entertainment and Hanukkah activities are free with admission. Enjoy an outdoor Elf Town, Sweet Shop and Very Merry Market. Presented by Republic Bank. Details at FestivalOfTreesAndLights.org . Norton Children’s Hospital Home & BMW Raffle open houses , every Saturday and Sunday through Nov. 16, 11 a.m. to 3 p.m., at 6222 St. Bernadette Ave., Prospect, Kentucky. Tour a beautiful new home in Norton Commons valued at over $900,000. A cash option of $500,000 is available instead of taking ownership. Your ticket also means a chance at a 2025 BMW X1 from BMW of Louisville plus $10,000. Only 18,000 tickets will be sold; $100 each. Purchase your raffle ticket at HomeAndBMWRaffle.com .

15 to 17

When the new hospital at 28th Street and West Broadway in Louisville opens on Nov. 11, Norton Children’s pediatric specialists will rotate in its outpatient office. Pediatric endocrinology, hematology and pulmonology physicians will be available to see children with diabetes, sickle cell disease, asthma and other conditions treated by these types of specialists. Norton West Louisville Hospital is the first hospital to be built west of Ninth Street in more than 150 years. Stay up to date on the latest news from the new hospital at NortonWestLouisvilleHospital.com .

Now to Nov. 16

Quarter million raised for pediatric heart care! Remember spring? On one beautiful evening in June, the community came out in a big way to support Norton Children’s Heart Institute. Bourbon & Bowties™ is one of the most special events in our community. More than 50 chefs and 1,400 attendees enjoyed an evening of gourmet food tastings and cocktails, presented by Northwestern Mutual, and raised more than $260,000! Save the date for the June 5, 2025, event. Buy your tickets starting March 20, 2025, at 9 a.m. Join the mailing list at NortonChildrens.com/BourbonAndBowties .

APRIL

A growth spurt for Norton Children’s pediatricians As the need for pediatric care grows, so does the

footprint of Norton Children’s. We’re pleased to announce that five new pediatrician’s offices have opened, making “Just for Kids” care available to more families. The new Norton Children’s Medical Group offices are located in Bowling Green, Frankfort, Pleasure Ridge Park in Louisville, Prospect and Norton West Louisville Hospital. Find a location near you at NortonChildrens.com/Pediatricians .

Connect with us! Follow us on social media to stay up to date on events and happenings. Feel free to drop us a note or share your experience @NortonChildrens !

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