Stewardship Report Volume 8 - Winter 2025

Research and Science / Research — Rare Subtypes

VISION expands with 500+ participants registered

“The VISION Registry allows us as patients to provide information to help researchers identify characteristics and potential causes of ocular melanoma. The latest updates to the registry streamline the process with a well-thought-out user experience , making it much easier to provide updates.”

The VISION Platform (VISION) is in its fourth year of recruitment with over 500 registered participants from around the globe. VISION’s power is elevating the patient perspective by collecting patient-reported data. The VISION team is currently working with partners and stakeholders to incorporate VISION into ongoing clinical trials. We continue to use VISION data highlighting the patient journey to improve patient care and access to new effective treatment options.

— Registered User

“This innovative platform is making a difference by fostering connections and opening doors to finding clinical trials that work for you. Let’s take advantage of these resources and support one another on this journey!”

ENROLLMENT STATS:

Participants 500+

States 43

Countries 9

— Registered User

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