Education, Awareness, and Prevention / Education — Rare Subtypes
Ocular Melanoma (OM) Support Group
Eye on OM Quarterly Newsletter The newsletter includes: • C ommunity Stories: Inspiring updates from those impacted by ocular melanoma • Research and Science: Latest breakthroughs in ocular melanoma research • Advocacy News: Updates from city councils to Capitol Hill • Educational Resources: New tools and materials for patients and caregivers • Upcoming Events: Mark your calendar for key CURE OM events MAY 3RD–5TH, 2024/80 ATTENDEES Sessions included: • P rimary Ocular Melanoma Diagnosis and Treatment • Overview of Metastatic Treatment Approaches • Patient and Caregiver Panel • Community Building and Self-Care including a drum circle • Mind-Body Skills for Managing Uncertainty and Fear of Recurrence Eyes on a Cure: Ocular Melanoma Patient and Caregiver Symposium (Boston, MA)
The Ocular Melanoma online support group had a successful year, with up to 25 participants per group. The group included individuals with both primary and metastatic OM, creating a diverse and supportive community. We had expert speakers who shared about: • Low vision support • Peer-to-peer support • Mental health and cancer exercise • Nutrition • Cancer and Careers
To join an Ocular Melanoma Support Group, contact CUREOM@melanoma.org
2 Rare Melanoma “Ask the Expert” Webinars Were Held • U nderstanding Uveal Melanoma: Screening, Diagnosis and Treatment Options • Finding Support in the Adolescent and Young Adult (AYA) Melanoma Community
21 • Stewardship Report
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