V. Primary Tumor Surveillance
At the end of the Surveillance section of the Primary Diagnosis and Treatment Survey VISION participants are given the opportunity to share their experience with their follow-up plan after being diagnosed with ocular melanoma. Patients who provided comments particularly expressed challenges they experienced with surveillance, including COVID impacting monitoring plans; examples are outlined below: “When I asked if there would be ongoing surveillance, I was informed by the oncologist that there was no point as there was no treatment.” “The original doctor was great at the initial diagnosis of OM, but never told me it could metastasize. He never did follow-up scans. In fact, after a few years, he stopped looking at the OM eye (which was enucleated) and only briefly looked at my good eye.” “MRIs and CTs changed to ultrasounds as insurance would not cover these after a certain amount of years.” “I had difficulty getting an MRI approved by insurance unless I had symptoms. I plan on getting an ultrasound if possible.”
How satisfied was the patient with their surveillance plan?
10%
NOT AT ALL
6%
A LITTLE BIT
13%
SOMEWHAT
27%
QUITE A BIT
41%
VERY MUCH
“COVID has impacted surveillance arrangements.”
3%
UNKNOWN
2022 VISION Registry Data Report
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