IX. Appendix
VISION Steering Committee Acknowledgment
We extend our sincerest appreciation to the members of the CURE OM VISION Steering Committee. Their support and dedication in helping to create and launch the VISION Registry in 2021 cannot be overstated. We also take this moment to acknowledge and thank them for their efforts in helping to create the first 2022 VISION Registry Data Report.
Sara M. Selig, MD, MPH Co-Founder & Director, CURE OM Melanoma Research Foundation Associate Physician, Brigham and Women’s Hospital Harvard Medical School Andrew E. Aplin, PhD
Bertil Damato, MD, PhD, FRCOphth Ocular Oncologist Professor of Ophthalmology and Radiation Oncology Oxford University Nigel Deacon Patient (Diagnosed with ocular melanoma in 2010, metastasized in 2012) Founded Ocumel Canada to advocate on behalf of Canadian OM patients Kerry Goetz, MS eyeGENE Program Manager and Data Specialist National Eye Institute National Institutes of Health Dan S. Gombos, MD, FACS Ocular Oncologist Professor and Chief Section of Ophthalmology Department of Head & Neck Surgery MD Anderson Cancer Center Houston, Texas
Ivana Kim, MD Ocular Oncologist Associate Professor of Ophthalmology Harvard Medical School Co-Director Ocular Melanoma Center Massachusetts Eye and Ear Infirmary Chad Kimbler, MSc Patient (Primary Disease) Miguel A. Materin, MD Ocular Oncologist Professor of Ophthalmology Director, Ophthalmic Oncology Duke University Eye Center Linda O’Brien Patient (Primary Disease) 9 years NED Marlana Orloff, MD
Barbara Perez, BSN, RN Research Nurse Specialist, Ocular Oncology University of Miami Health System Shana Ratner, MD Daughter and Internist Family Member of OM Patient Ashley Land Schoenfisch Family Member and Epidemiologist Duke University Carla Tressel Patient
Associate Director for Basic Research
Program Leader for Cancer Cell Biology and Signaling (CCBS) Kalbach-Newton Professor in Cancer Research Rich Carvajal, MD Medical Oncologist Associate Professor of Medicine Director of Melanoma Service
Metastatic Disease Susan L. Vine
OcuMel Australia and New Zealand Renee M. Zalinsky, RN, OCN Senior Cancer Care Coordinator Metastatic Uveal Melanoma Navigator/ Senior Cancer Care Coordinator Sidney Kimmel Cancer Network at Jefferson University Hospital
Director of Experimental Therapeutics Columbia University Medical Center Cody Chiuzan, PhD Statistician Department of Biostatistics Columbia University
Medical Oncologist Associate Professor
Department of Medical Oncology Thomas Jefferson University Hospital
2022 VISION Registry Data Report
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