Melanoma Research Foundation Stewardship Report
RESEARCH
EDUCATE
ADVOCATE
Fall/Winter 2018
Mission Statement
The Melanoma Research Foundation is committed to advancing lifesaving melanoma RESEARCH, increasing EDUCATION about the prevention, diagnosis and treatment of the disease and leading global ADVOCACY efforts to promote policies and initiatives that are most needed by the melanoma community. This critical work is made possible by the steadfast commitment, constant innovation and unwavering generosity of a community united in the fight against melanoma. Guided by the principles of responsible stewardship and continued progress, this report shares some recent highlights of what we have accomplished together.
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Table of Contents
Mission Statement ................. 1
Global Coalition..................... 9
#GetNaked Gets Real ......... 3
Ocular Melanoma.................. 11
Research .................................... 5
Reach......................................... 14
Education .................................. 7
Community.............................. 16
Advocacy................................. 8
#GetNaked Gets Real
In honor of Melanoma Awareness Month, the MRF unveiled a new look for its award-winning melanoma early detection campaign. Instead of professional models, the #GetNaked campaign celebrates the images and stories of real melanoma patients, survivors and caregivers in our community.
#GetNaked Stories
JACKIE “While my friends were applying for jobs and graduate school, my doctor told me not to make plans beyond five years.” Read Jackie’s Story
JOE “One month before our wedding, I noticed a lump.” Read Joe’s Story
MISSY “We had just had a full checkup. It changed that suddenly.” Read Missy’s Story
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#GetNaked Gets Real
#GetNaked on YouTube
#GetNaked in Times Square!
l Go behind the scenes for the sights and stories of the #GetNaked photo shoot!
l The new campaign was broadcast for three months in Times Square, New York City, gaining approximately 1.3 million impressions.
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Research
RESEARCH FUNDING In 2018, the MRF has awarded over $1.5 million in research funding.
Established Investigator AWARDS
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MRF RESEARCH FUNDING NOW TOTALS OVER $16.8 MILLION 2018 grant recipients included four focused on rare melanoma subtypes:
RESEARCH GRANTS FUNDED IN 2018
Career Development AWARDS l Two ocular melanoma-focused grants Medical Student AWARDS l The most ever given in a single year
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l Ocular melanoma (2) l Mucosal melanoma (1) l Pediatric melanoma (1)
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GRANT SPOTLIGHT
Walter Fast, Ph.D. was awarded a one-year MRF CURE OM PILOT PROPOSAL FOCUSED ON GNAQ/11 MUTANT UVEAL MELANOMA.
$100,000
l This $100,000 grant was made possible through the efforts of the MRF and the generosity of Jack Odell, John Dagres and their supporters. l More information about Dr. Fast’s research is available on the MRF blog.
MelanoMa ReseaRch Foundation
Cure OM Ocular Melanoma
Grant With New Funding Support
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Research
GRANT OPPORTUNITY
MEETINGS AND PUBLICATIONS In collaboration with the National Cancer Institute (NCI) melanoma Specialized Programs of Research Excellence (SPOREs), the MRF sponsored a second workshop on melanoma brain metastases (MBM). Findings from the meeting are being published in a white paper.
2018 PARTNERSHIP WITH BRISTOL-MYERS SQUIBB (BMS)
The MRF Breakthrough Consortium convened a meeting of melanoma thought leaders at ASCO 2018 to discuss new initiatives and opportunities for collaboration.
Since 1998:
Presentations given by 69 MRF grant recipients
l MRFBC-BMS YOUNG INVESTIGATOR RESEARCH TEAM AWARD to Advance the Field of Translational Immuno-Oncology
346
Career Development AWARDS
83
181
Publications
Medical Student AWARDS
46
Clinical Trials
15
Applications are currently under review. This grant will be awarded in early 2019.
Established Investigator AWARDS
29
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Patents
6
Education
TEN PATIENT SYMPOSIA IN 2018 | Hosted throughout the U.S.
LAUNCHED NEW TREATMENT CENTER FINDER National database searchable by location and melanoma specialization
LOS ANGELES, CA l ATLANTA, GA l DENVER, CO l COLUMBUS, OH PHILADELPHIA, PA l CHAPEL HILL, NC l SEATTLE, WA l DALLAS, TX CHICAGO, IL l ST. LOUIS, MO
“I look forward to this every year. It keeps us informed and hopeful. Thank you!”
“Thank you so much to the MRF, Siteman
Cancer Center Alliance and all the partners for sponsoring this exciting and important event! Awesome all around!”
“Please keep having these
“It is always so informative, supportive and inspirational.”
symposia. They are supportive, informative and inspiring. Thank you!”
NEW WEBINAR SERIES View these webinars and watch for new recordings that will be coming soon at www.melanoma.org/webinars.
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Advocacy
ADVOCACY SUMMIT AND HILL DAY l 100 melanoma volunteer advocates from 32 states held 60 meetings with lawmakers in Washington, DC.
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Meetings with lawmakers in Washington, D.C.
The MRF strengthened partnerships with organizations like the BIDEN CANCER INITIATIVE, STUPID CANCER and the MELANOMA RESEARCH ALLIANCE to take on issues including:
8 to 80 The ages of our volunteer advocates
l Increasing Department of Defense (DoD) Peer-Reviewed Cancer Research funding to $80 million l Securing $10 million in dedicated DoD funding for melanoma research
l Deferment for Active Cancer Treatment Act l Opposing the repeal of the Tanning Tax l Inaugural Young Adult Cancer Action Day
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Global Coalition
Mission
Goals
In response to a global need to bring the patient voice to the melanoma space, in 2014 the MRF united organizations from around the world to create the Global Coalition for Melanoma Patient Advocacy.
EXPAND ACCESS TO TREATMENT
INCREASE MELANOMA AWARENESS
IMPROVE CLINICAL TRIAL DESIGN AND ACCESS
l Today the coalition represents 45 members from 27 countries.
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Global Coalition
“We are accomplishing more together than we ever could by staying within the boundaries of our own countries. It is exciting to see the international awareness growing through our work, with initiatives like World Melanoma Month.”
Diane Cannon Melanoma UK
INTERNATIONAL CONFERENCE In October 2018, the 5 th Annual Global Coalition for Melanoma Patient Advocacy met in Manchester, England in conjunction with the Society for Melanoma Research International Congress.
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Ocular Melanoma
7TH ANNUAL EYES ON A CURE: PATIENT AND
EYES ON A CURE: PATIENT AND
CAREGIVER SYMPOSIUM
CAREGIVER SYMPOSIUM April 20–22, 2018
Held in conjunction with Wings of Hope for Melanoma Denver Gala
Thursday, April 19, 2018 6:00 PM – 10:00 PM Mile High Station 2027 West Lower Colfax Avenue Denver, CO 80204
Collaborations 10 institutional and industry collaborations Attendance 105 attendees from 20 states and two countries
MORE THAN EXCELLENT!
“Wow! If there was a ‘more than excellent’
“It was an incredibly well-run weekend. Venue was great! Food, snacks and beverages were amazing! Thanks so much for having it be a free event. It really lessened the stress to feel taken care of. Enjoyed meeting other participants and hearing their stories! Thanks for it all!”
button, I would have hit it! He explained things in a way that I actually got it! The best presentation I have ever seen at an OM event.” 2018 Symposium Attendee “It was a wonderful uplifting experience. Everyone was very caring and warm. Loved it and will keep coming back.”
2018 Symposium Attendee
“Thank you for your attention to planning a symposium with diverse speakers. It was an amazing and empowering experience.”
2018 Symposium Attendee “He did a great job explaining how mindfulness can help with the stress of living with cancer.”
Scientific agenda supplemented with mindfulness activities and workshop Agenda
2018 Symposium Attendee
2018 Symposium Attendee
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Ocular Melanoma
EYES ON A CURE: PATIENT AND CAREGIVER SYMPOSIUM
Following the symposium, guests were invited to an informal reception with CURE OM organizers and Dr. Peter Hovland.
OCULAR MELANOMA AWARENESS CAMPAIGNS
1 February 28, 2018 RARE DISEASE DAY
2 May 2018
3 November 2018 #EyeGetDilated
“I PATCH FOR” CAMPAIGN Hosted with international partner
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Ocular Melanoma
CURE OM IN THE COMMUNITY
Miles for Melanoma Los Angeles: Team Frank’s CURE OM Squad raised over $5,500.
Miles for Melanoma DC: Team CURE OM was the top overall fundraiser, with over $11,000 raised for ocular melanoma research and education.
l UNIVERSITY OF COLORADO l MD ANDERSON CANCER CENTER l COLORADO RETINA ASSOCIATES l SITES AND INSIGHTS l HIGHLANDS INTEGRATIVE PEDIATRICS l THOMAS JEFFERSON UNIVERSITY l COLORADO DEPARTMENT OF HEALTH l NORTH CAROLINA DEPARTMENT OF HEALTH AND HUMAN SERVICES
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PARTNER INSTITUTIONS
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Reach
A NATIONAL SPOTLIGHT ON MELANOMA
MRF
l Over 3.6 million site visits to melanoma.org so far in 2018
l Social media audience of over 56,000 users
MELANOMA AWARENESS MONTH
Melanoma Awareness Month
l During May 2018, the MRF website reached 350,000 users and social media impressions topped 693,000.
l #GetNaked video message in Times Square PSA earned 1,300,000 impressions.
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Reach
NEWS OUTLETS MRF programs and resources featured in major television, radio and online media outlets.
NORAH O’DONNELL’S STORY
As part of Coolibar’s Melanoma Awareness Month campaign to support the MRF, Norah O’Donnell shared her melanoma story from the set of CBS This Morning .
In the Media
MRF
MRF
MRF
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Community
MRF IN THE COMMUNITY
Partnerships
NEW
MRF partner CultHealth launched THE MELAGNOMES awareness campaign throughout New York City and online.
CommUNITY FUNDRAISING TOOLS
NEW
Launched CommUNITY Fundraising Toolkit, providing creative fundraising ideas and guidance for first-time fundraisers.
Through Facebook Fundraisers, the MRF Facebook community has raised OVER $325,000 IN 2018.
CultHealth was also a sponsor at the Wings of Hope for Melanoma New York Gala.
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Community
MILES FOR MELANOMA In over a dozen cities across the U.S., more than 750 Miles for Melanoma teams raised more than $1.1 million dollars.
OVER 12,000 DONORS
MILES FOR MELANOMA
THECUREFOR ME LANOMA BEGINSWITH ME
$1.1 MILLION DOLLARS RAISED
BOSTON, MA
CLEVELAND, OH
12+
WASHINGTON, DC
TWIN CITIES, MN
LOS ANGELES, CA
PHILADELPHIA, PA
CHICAGO, IL
MORRISTOWN, NJ
DENVER, CO
NEW YORK CITY, NY
SAN FRANCISCO, CA
ATLANTA, GA
LOCATIONS
MEMPHIS, TN
SAN DIEGO, CA
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Community
WINGS OF HOPE FOR MELANOMA
The 2018 Wings of Hope for Melanoma Gala series raised over $1.7 million dollars!
CHICAGO Fund-a-Grant raised $70,000. • More than doubled last year’s total.
2018 GALAS
$70,000 DOLLARS RAISED
WINGS OF HOPE FOR MELANOMA WASHINGTON, DC February 24, 2018
DENVER Fund-a-Grant raised $10,000 more than previous year. • Resulted in two additional medical student research grants.
$10,000 MORE DOLLARS RAISED
DENVER April 19, 2018
PHILADELPHIA June 13, 2018 CHICAGO September 26, 2018 NEW YORK October 11, 2018
PHILADELPHIA Attendance nearly tripled from 150 attendees in 2017 to over 400 in 2018. • Gala raised over $182,000 — almost double previous year’s total.
$182,000 DOLLARS RAISED
2018 $
NEW YORK Set a fundraising record: over $1 million dollars raised!
$ 2017
DOLLARS RAISED $1 MILLION+
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THIS LIFE-SAVING WORK WAS MADE POSSIBLE BY YOUR GENEROSITY.
THANK YOU.
MELANOMA RESEARCH FOUNDATION 1411 K Street, NW Suite 800 Washington, D.C. 20005 202.347.9675 or 800.673.1290
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