S778
Clinical - Lung
ESTRO 2026
However, PCI has a risk of long-term neurotoxicity1. Patient information about PCI is available through cancer charities, NHS patient information sheets (PIS), and clinical guidelines. In this complex setting, patients need consistent, balanced information to support informed and shared decisions. Yet the availability, alignment, and effectiveness of existing resources in enabling shared decision-making (SDM) remain uncertain. Material/Methods: An environmental scan2 identified UK cancer charities, PIS, and international guideline resources relating to PCI. A survey was also distributed to NHS thoracic oncologists to gather information about resources. Documents were assessed using qualitative analysis and the International Patient Decision Aid Standard (IPDAS) 12-item checklist3 (clarity, balance, transparency, evidence) and scored as either present or absent. Results: Preliminary analysis included 14 patient-facing resources (charity, n=6; PIS, n=8), 3 clinical guidelines, and 14 survey responses. Scoring against the IPDAS, most resources explained the health problem (n=11), presented positive (n=11) and negative features (n=12), but few presented current evidence (n=4). None of them mentioned alternative options, incorporated psychosocial implications, or quantified probabilities (figure one). Further qualitative analysis showed that the tone was generally neutral, and 6 resources stated that the decision could be influenced by patient preferences. However, the resources did not include methods that help patients analyse their personal values when making these decisions. Only a few resources provided emotional reassurance, included patient quotes, and just over half included pictures. Guidelines acknowledged that clinicians and patients should engage in SDM and discussed alternative options to PCI, but framed these as research. The average reading age for resources was equivalent to ages 13-14, which is higher than the recommended UK reading level of 9-11 years. Guidelines were suitable for postgraduate level. The survey demonstrated that respondents do not always provide written information to patients (yes, n=8; no, n=6), and do not use standardised decision support (n=13). All respondents discuss similar PCI topics with patients (table one).
Conclusion: Resources vary in presenting PCI and alternative management options. Although guidelines and PIS aim to support informed choices, they do not effectively enable SDM in practice. Patients and clinicians often lack adequate tools to explore treatment options (PCI, MRI surveillance, no PCI), personal values, and perceived risks. Structured, evidence-based decision aids are needed to translate available information into accessible, value-sensitive formats that better support SDM. References: 1. Dingemans AMC, Früh M, Ardizzoni A, et al. Small- cell lung cancer: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up ☆ . Annals of Oncology 2021;32(7):839-53. doi: 10.1016/j.annonc.2021.03.2072. Graham P, Evitts T, Thomas-MacLean R. Environmental scans: how useful are they for primary care research? Canadian Family Physician 2008;54(7):1022-23.3. Stacey D, Volk RJ. The International Patient Decision Aid Standards (IPDAS) Collaboration: Evidence Update 2.0. Medical Decision Making 2021;41(7):729-33. doi: 10.1177/0272989X211035681 Keywords: Small cell lung cancer, shared decision- making Digital Poster 1989 Development of A Co-designed ePROMs-Integrated Review Pathway During Lung Cancer Radiotherapy. Sarah Bowen Jones 1,2 , Thitikorn Nuamek 3 , Hebatalla Abdelaal 1 , Danya Abdulwahid 1 , Claire Barker 1 , Kathryn Banfill 1 , Neil Bayman 1 , Michelle Bewley 1 , Clara Chan 1 , Joanna Coote 1 , Margaret Harris 1 , Ashley Horne 1,2 , Jennifer King 1 , Laura Pemberton 1 , Hamid Younus Sheikh 1 , Maria Vassilou 1 , David Woolf 1 , Janelle Yorke 4,5 , James Price 1,2 , Corinne Faivre-Finn 2,1 1 Department of Clinical Oncology, The Christie NHS Foundation Trust, Manchester, United Kingdom. 2 Division of Cancer Sciences, The University of
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