MARCH 2024 NEUROENDOCRINE CANCER UK QUARTERLY NEWSLETTER

My ‘Friend

STORIES & EXPERIENCES

In June 2021, I was diagnosed with an 11cm tumour on the tail of my pancreas , a liver biopsy at The Christie NHS Foundation Trust in Manchester, my consu August 2021. I was made aware that they couldn’t operate on my cancer or cure

Armed with my tablets and a spreadsheet on my fridge, my chemo journey began. I knew friends expecting to feel unwell at times although I had been told that I shouldn’t lose my hair (a big plus!) I always took my tablets at the same time each day, the Cap. tablets with my breakfast and evenin After about 5 months on the chemo tablets my main tumor was beginning to shrink and I was getti the weight I lost is starting to go back on again!). I am lucky in that I have very few side effects from the tablets, I was sick once in the first couple o nails are very flaky. But otherwise, for some reason, my body is coping with the chemo very well. I have now just started my 30th month on Cap/Tem. The tumour on my pancreas has shrunk to 6 otherwise, I am back to enjoying the things I used to enjoy – gardening, walking, singing, church a At the age of 74, my life is full again. I am now able to forget about the cancer for most of the time ‘F’s’ family, friends and faith. I obviously don’t know how long I can continue on the tablets but whi I hope this will give some of you who are recently diagnosed with neuroendocrine cancer a more p more than me. And can I give a huge vote of thanks to all the staff at The Christie who are always For the previous six months, I had slowly been getting more lethargic. I could only walk for about h weight weekly (which I quite enjoyed) and had completely lost my appetite for cake (very unusual) having side effects from recently being put on blood pressure tablets. When I reported these symp rolling with blood tests and scans. Three months later I was given my diagnosis . To be honest it was a relief to know the diagnosis. Although for the first year, I thought I had pancr the pancreas’ when doctors talked about my cancer. At this point, the word ‘neuroendocrine‘ had n to me).

Finding Strength in Community: Carole’s Neuroend

Carole’s Story Neuroendocrine Cancer Site: Pancreas Hospital: The Christie, Manchester

Carole Shaw, also known as Carole Wickets, reflects on her journey with neuroendocrine cancer a Initially diagnosed with pancreatic neuroendocrine cancer in 2012, Carole navigated through vario Cancer UK community. She shares her experiences of treatment, including a distal pancreatectom participation in a gallium 68 PET scan trial. Despite feeling uncertain after being discharged from t the Neuroendocrine Cancer UK community. She emphasises the importance of seeking support a Cancer UK. CLICK HERE to read Carole’s story in full.

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