MARCH 2024 NEUROENDOCRINE CANCER UK QUARTERLY NEWSLETTER

d’, CAPTEM by Cynthia

, with metastases in my liver and lymph nodes. After ultant decided to put me on Cap/Tem chemo tablets in e me, but they could help to improve my quality of life. half an hour before needing to sit and rest. I was losing ) but I was not in any pain. I thought I was probably ptoms to my amazing GP, he immediately set the ball

reatic cancer as I just listened to the words ‘tumour on no meaning to me (thank you Kate for explaining things

who had had chemo treatment and many had really struggled with side effects so I was ). ng meal, then Tem. and Ondansetron (for any nausea) on an empty stomach just before bedtime. ing my energy back. I stopped losing weight and started to enjoy cake again (the downside is that

of months, I get constipated when I am on both tablets, I have periods of sleeplessness and my

cm and is stable. My other tumours are also stable. I occasionally have a nap during the day but activities, organising concerts and socialising. e, knowing that I have the best care at The Christie. The things that keep me so positive are my 3 ilst they are continuing to work I will continue to have my monthly chemo. positive perspective, although I do know that many people with neuroendocrine cancer suffer so caring and cheerful, no question is ever too much trouble for them to answer.

docrine Cancer Story

and the support she found through Neuroendocrine Cancer UK. ous challenges, including the aftermath of a scam and finding solace in the Neuroendocrine my and monthly Sandostatin injections, highlighting her transition to The Christie Hospital and the hospital, Carole finds comfort in the enduring friendships and support network formed within and remaining connected, expressing gratitude for the unwavering support of Neuroendocrine

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