CARCINOID HEART D DEVISING A NATIONAL STRAT The UK & Ireland Neuroendocrine Tumour Society (UKINETS), along highlight the challenges of managing carcinoid heart disease (CHD) an working to create a national strategy for the management of CHD. Neu initiative to include the experience of those with CHD. In the UK, Carcinoid Heart Disease likely affects 30-50 patients per ye develop features of heart failure and suffer rapidly declining nutrition w patients is challenging and requires many experts working closely toge During the 3rd International Carcinoid Heart Disease Conference, held Centres of Excellence in the UK. These would meet criteria set by a U At the beginning of February, a focus group was held with those living and management of their condition. The focus group also discussed w feedback on the initial concept of the UKINETS certified CHD centres. circulated more widely to the NET and cardiac community for review a project forwards.
LONDON NORTH WEST UNIVE We have been working with the Nurse Specialist teams (e.g., Co Through conversations and mee seen that they are taking on mor them how they (and their patient We have now delivered 2 teachi 2 HPB and Upper GI) “the feed valuable” with a 3rd session pla We have also provided bespoke registration level, across other te the UK - and are always happy t
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