Time to Count People with Metastatic Breast Cancer

Roundtable format and agenda The roundtable involved a series of plenary sessions from key experts and champions within the sector to share their insights of work to date, pre-roundtable survey results , ‘quick fire’ presentations and group workshops, and a prioritisation exercise that asked attendees to prioritise potential solutions developed in the workshops across the next 2, 5 and 10 years (in line with the timeframe set out in the 10-year Australian Cancer Plan). Roundtable sessions were recorded to assist with the roundtable write-up. To enable full and frank discussions, Chatham House rules applied, and roundtable attendees were assured that any material developed by BCNA regarding the roundtable would not include attribution of statements to individual attendees, unless explicit permission had been sought. The program was co-designed with BCNA’s Project Steering Committee, with input from Professor Sanchia Aranda AM, Cancer Council Australia, representatives from the PBCRs and other key stakeholders. The agenda was structured around the 2 broad themes of ‘capacity’ and ‘access’, with 3 areas of specific focus:

1. Data and processes

Data items, definitions, data harmonisation and quality, cancer notification and reporting processes, and data linkage

2. Resources and technology Funding, workforce, technology (e.g. artificial intelligence), systems

3. Governance and policy

Legislation, policy, regulation, privacy/access, data custodianship

Presentations covered a range of topics, including: - the new Australian Cancer Plan - opportunities if Australia invested more funding into its cancer data system - innovations in technology that could be utilised - the importance of health data linkages in identifying cancer recurrence - international case studies that might inform Australia’s approach - findings of the pre-roundtable attendee survey. Two workshops were run, with attendees divided into 3 groups to reflect the 3 areas of

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National Roundtable Report

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