Table 1: Most significant barriers and challenges identified by attendees via the pre- roundtable survey Governance, legislation, policy-related barriers/challenges (n = 17) 1. Insufficient prioritisation of cancer stage and recurrence data collection/collation and reporting by policymakers 2. Differing state and territory legislative arrangements regarding cancer notification requirements 3. Complexities regarding Commonwealth and state/territory health data governance and data custodianship arrangements 4. Concerns about data security and privacy Resourcing-related barriers/challenges (n = 18) 1. Lack of dedicated funding for cancer stage and recurrence data collection/collation 2. The manual nature of many cancer notification and registration processes 3. Cancer registry workforce constraints Technical barriers/challenges (n = 18) 1. Challenges relating to structured reporting of pathology data 2. Methodological complexity relating to cancer stage or recurrence data collection/analysis 3. The lack of an agreed national definition of cancer recurrence 4. Lack of routine and enduring health data linkages 8. Prioritisation of recommendations and timeframe for change In the final session of the day, attendees were asked to consider the solutions identified in the workshop session and to prioritise them over the coming 10 years. Each attendee was given 15 stickers, which they could place next to the solutions to be prioritised. Attendees were also asked to consider timing, placing red stickers next to solutions that should be prioritised in the next 2 years, yellow stickers next to solutions to prioritise in the next 2 to 5 years, and green stickers next to solutions that should be prioritised over 5 to 10 years. Each attendee was given 5 stickers corresponding to each timeframe, with instructions to allocate all 15 among draft recommendations. Following voting, attendees discussed the solutions/approaches that had been prioritised most highly, considering issues of implementation, sequencing and resourcing. The following table sets out the verbatim actions prioritised by the attendees, aligned to the timeframe set out in the 10-year Australian Cancer Plan. These actions formed the basis of the final recommendations outlined at the start of this report. They underwent further stakeholder consultation with consideration of roundtable discussions, plenary sessions, presentations and workshops during refinement.
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National Roundtable Report
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