Time to Count People with Metastatic Breast Cancer

Harness breast cancer data for improved outcomes using data as a key asset

[The] good use and smart use of data brings strength and opportunity rather than risk if it’s done well. It’s about value. Data is an asset that we have and that we want to build on and use to improve outcomes...breast cancer has a long history of leading the way for other cancers, and I think that’s the opportunity here, to get it right in breast cancer, and then, to be able to think about other people with metastatic and advanced disease and how their outcomes can be improved. [W]e have in front of us the evidence that we need to improve the health system, and that means living lives, all of us living our lives in better ways, but we don’t use that data. We’re decades behind. As much as that Australia may be a little bit behind, I think now is the opportunity for Australia to say, ‘How do we leapfrog forward? How do we perhaps go beyond what...other jurisdictions have been doing for 20 or 30 years, and really make it cutting edge? How do we make it worthy of our implementation that’s going to hold us for the next decade or so?’ I think that is an opportunity.

Move forward with population-level breast cancer stage and recurrence data because it is achievable

I know it’s complicated, but just hearing what’s happening in [international jurisdiction] made me think, ‘Oh, why have we delayed?’ And I think it’s really time to stop delaying. [T]here are other countries who collect this information, it can be done. Australia, with all of its wealth and its desire to do certain things, and it plays as a national or a huge player in the international stage, it can be done. We really need to think through today...what those roadblocks are and just figure out how to bust through them.

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National Roundtable Report

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