Time to Count People with Metastatic Breast Cancer

Resourcing constraints 1. Lack of dedicated funding for cancer stage and recurrence data collection/collation 2. The manual nature of many cancer notification and registration processes 3. Insufficient investment in new technologies, such as AI 4. Cancer registry workforce constraints 5. Hospital/health service workforce constraints 6. The number of different tumour types constrain registries’ capacity to stage breast cancer cases 7. The time and costs for researchers applying for permission to link health data sets Technical issues 1. The lack of an agreed national definition of cancer recurrence 2. Methodological complexity relating to cancer stage or recurrence data collection/ analysis 3. Lack of routine and enduring health data linkages 4. Challenges relating to structured reporting of pathology data 5. Population based cancer registries’ lack of access to imaging data 6. Different staging systems used by Australian state and territory cancer registries Do you have any additional barriers to add?

November 2023

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