Appendix C: Extended analysis: most significant barriers and challenges to population-level breast cancer stage and recurrence data A key aim of the pre-roundtable survey and first roundtable workshop session was to identify and develop consensus regarding what the most pressing barriers are, which must be addressed for Australia to achieve routine and systematic population-based national breast cancer stage and recurrence data. Challenges and barriers were discussed in relation to the following 3 areas of focus: 1. Data items, processes and linkage 2. Resourcing and technology
3. Governance, legislation, policy and regulations Key data, processes and data linkage-related barriers
In the pre-roundtable survey, respondents nominated the following data, processes and data linkage-related processes as the most significant in preventing national breast cancer stage and recurrence data:
Most significant challenges/barriers (n=18) *
1. Challenges relating to structured reporting of pathology data
2. Methodological complexity relating to cancer state or recurrence data collection/analysis
3. The lack of an agreed national definition of cancer recurrence
4. Lack of routine and enduring health data linkages
* Ranked by weighted average During the first workshop, attendees discussed and elaborated on these and several additional barriers to national breast cancer stage and recurrence data.
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