4. Establishment of a national cancer data strategy and framework, leveraging strengthened mechanisms for national collaboration and coordination – Attendees highlighted the need for a national strategy to guide Australia’s approach to cancer data collection, collation, reporting and use, with the inaugural Australian Cancer Plan discussed as a key mechanism for this work. Strengthened mechanisms for intergovernmental coordination and collaboration are needed, as well as greater collaboration between governments, Cancer Australia, the Australian Institute of Health and Welfare (AIHW), the AACR, state and territory cancer registries, the colleges and professional associations, non-profits and cancer consumers. Cancer Council of Australia’s new Data Maturity Model was regarded as an important initiative that needs to inform the national strategy.
5. Breast cancer as a pilot for national stage and recurrence data capture – While national-level stage and recurrence data for all cancer types is needed, attendees discussed the value of breast cancer serving as a pilot opportunity, enabling the trialling of new approaches that could be applied to other cancer types.
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…[S]tarting with breast cancer is important because we can leverage what we learn from that for other cancers, so overall, we will be a more efficient registry and we can give that data on everything, but we need to start with breast cancer.
6. Incentivising or mandating cancer recurrence collection – Further consideration is required regarding whether state and territory
governments should mandate cancer recurrence collection via legislation, as is the approach in Victoria. While some attendees felt legislation was important, others favoured an approach focused on more strongly incentivising the collection of cancer recurrence data as well as providing education for healthcare staff regarding the importance of the cancer notification processes and the benefit of cancer data capture for people affected by cancer.
November 2023
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