“I have learned as a caregiver to arm myself with information because the doctors don’t always tell you everything you need to know to make an informed decision.” — Peter
Stay organized and prepared Manage health information l Write everything down in one notebook, such as doctor names, medicines (new and old), X-rays, scans, lab reports and more. You can also keep helpful notes to share about your loved one, such as their pain levels, moods, naps and eating habits. l Keep an appointment calendar on your phone or on paper. l Write down a list of questions before visits, then write down the answers. Plan for doctor visits l Plan how you and your loved one will travel ahead of time. l Bring another person to visits — it helps to have someone else to listen and take notes.
During doctor visits l If you don’t understand something, don’t be afraid to ask the same question twice or ask the doctor to explain it in a different way. Medicine is complex, and sometimes doctors need reminders to slow down and explain things clearly! l Don’t be afraid to challenge the doctors if you or your loved one don’t agree with their decision or approach. Advocating (standing up) for what your loved one wants and needs is one of the most helpful things you can do. l Ask about treatment side effects so you know what to expect and can make the best decisions.
46 Melanoma Patient and Caregiver Guide | Stages 2–3
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