MELANOMA RESEARCH FOUNDATION ADVOCACY
The Melanoma Research Foundation (MRF) is the leading non-profit organization dedicated to eradicating melanoma by accelerating medical
RESEARCH while EDUCATING to and ADVOCATING for the melanoma community.
TOGETHER WE CAN
The MRF’s Advocacy Program convenes patients, caregivers, survivors, healthcare professionals and like-minded advocacy partners to unite in one voice for the melanoma community. Issues range from increased government funding for research to access to care. MRF advocates play a critical role in the advancement of better outcomes for the over one million Americans living with melanoma and their loved ones. The MRF is also a core member of several leading organizations that are dedicated to a future without melanoma including the National Council on Skin Cancer Prevention (NCSCP), Public Access to Sunscreen Coalition (PASS) and the SUNucate Coalition.
SUPPORTED LEGISLATION IN 28 STATES
Being an advocate is more than going to events or signing petitions and making calls. Being an advocate for the melanoma community is giving your time, your heart, your soul and sweat to a cause that is embedded inside your heart. Not just for the people battling now but for the people who haven’t even joined the fight yet.
My passion to advocate does not stop at the local and state level. This year I took part in the MRF’s Advocacy Summit and Hill Day in Washington, DC. I plan on making this an annual event and can’t wait to advocate for funding in 2020 and continue to educate and promote melanoma awareness.
— MRF ADVOCATE
— MRF ADVOCATE
RESEARCH • Funding for the Peer Reviewed Melanoma Research Program (PRMRP), including melanoma as an eligible cancer in the Department of Defense Appropriations bill • Inclusion of melanoma-specific report language under the National Cancer Institute (NCI) in the Labor, Health and Human Services (HHS) Appropriations bill • Support funding for the skin cancer prevention activities of the Centers for Disease Control and Prevention (CDC) in the HHS Appropriations bill
PREVENTION • Preserve the Affordable Care Act’s Indoor Tanning Tax (strongly supported by the American Academy of Dermatology (AAD)) • No copay skin screenings in 50 U.S. states • Increase the awareness of the dangers of tanning through increased use of black box warnings within tanning salons and marketing materials (i.e. websites, waiver forms, etc.)
ACCESS • Sunscreen in schools (in partnership with the SUNucate Coalition) • Access to safe and effective sunscreens as part of a comprehensive sun safe regimen, including working with the NCSCP, PASS, AAD, the U.S. Surgeon General and the FDA to ensure the patient voice is heard • Access to healthcare (in partnership with the American Cancer Society)
CURRENTLY THERE ARE OVER ONE MILLION AMERICANS LIVING WITH MELANOMA. WITH THE HELP OF OUR ADVOCATES, THE MRF HAS:
INCLUDED 17 PATIENT ADVOCATES IN THE GRANT REVIEW PROCESS
SECURED OVER $82 MILLION IN DEFENSE-FUNDED MELANOMA RESEARCH
HOSTED OVER 800 ADVOCATES AT OUR ADVOCACY SUMMIT AND HILL DAY
SCHEDULED OVER 475 MEETINGS WITH LAWMAKERS SINCE 2010
SUBMITTED COMMENTS ON THE FDA’S PROPOSED RULE ON SUNSCREEN
SUPPORTED THE PASSAGE OF THE DEFERMENT FOR ACTIVE CANCER TREATMENT ACT
SUPPORTED NC STATE BILL FOR FUNDING FOR HUNTERSVILLE OCULAR MELANOMA CLUSTER
HELD AN OCULAR MELANOMA PATIENT-LED FDA LISTENING SESSION
SUPPORTED FUNDING INCREASES FOR THE NATIONAL
SUPPORTED ACCESS TO CARE AND PROTECTION OF INDIVIDUALS WITH PRE-EXISTING CONDITIONS
INSTITUTE OF HEALTH AND NATIONAL CANCER INSTITUTE
TO LEARN MORE, VISIT MELANOMA.ORG/ADVOCATE
MELANOMA RESEARCH FOUNDATION melanoma.org/advocate 202.347.9675 or 800.673.1290Page 1 Page 2 Page 3 Page 4
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