Center For Pediatric: Torticollis

MUSCULAR DYSTROPHY &WHY PT IS SO IMPORTANT

As one of the most frequently inherited disorders worldwide, muscular dystrophy affects boys almost exclusively. Approximately 1 in 3,500 to 6,000 males born in the United States has Duchenne muscular dystrophy, the most common form of muscular dystrophy in children. Although there are several types of muscular dystrophy, they all involve muscle weakness and a loss of muscle mass. The arms and legs are often impacted first and other muscle groups follow later. As the muscles progressively weaken due to the condition, physical therapy can greatly improve a child’s abilities and quality of life. Muscular Dystrophy All muscular dystrophies stem from a change or mutation in a baby’s genes. Some children develop the condition as a result of inheriting an abnormal gene; others develop it from a spontaneous mutation when the baby is in utero. Parents often notice muscular dystrophy by observing their three-to-five-year-old child experiencing reoccurring tumbles, frequent toe walking, a slow run, and a waddling gait. Any delay in gross motor functioning, particularly sitting up, crawling, walking or running, can be cause for concern. At age 3 1/2, children who must roll onto their stomach in order to move up off the ground should be evaluated.

Kerri is a Speech-Language Pathologist with Center for Pediatric Therapies. Kerri works through Early Intervention to serve children who are Deaf or Hard of Hearing in the Roanoke Valley. She has 30 years of experience working with children who are Deaf or Hard of Hearing. Her experience has been with children with a range of hearing losses; those using hearing aids or cochlear implants, and with various choices of communication options. In addition to beingafluentsigner,Kerrihasnumerouscontinuing education hours in utilizing Listening and Spoken Language to facilitate communication in young children who have a hearing loss. Staff Spotlight Kerri Vipperman, MS, CCC-SLP SPEECH-LANGUAGE PATHOLOGIST Adaptive equipment and devices Children with muscular dystrophy have an increased risk of falls. Since the condition impacts visual abilities, muscle strength and overall mood, many patients require adaptive equipment to ensure safety and increase functioning. Physical therapists can help recommend and assist children in obtaining powered mobility devices, wheelchairs, canes and walkers. As general functioning declines, an occupational therapist can also guide children and adolescents in the use of long-handled sponges, button hooks, and pen cushions. As the effects of the disorder become more pronounced, the need for physical therapy shifts. At all stages, however, physical therapy plays an important role. Physical Therapy Physical therapy is integral to maintain muscle functioning and avoid joint problems. The goals of such therapy are to help a patient stay as flexible, strong and symmetrical as possible. A physical therapist works with the child to exercise, stretch, and maintain appropriate posture. Even when a person is relegated to a wheelchair, physical therapy can help improve a person’s abilities.

Exercise Weakness is a natural component to muscular dystrophy. However, it can play a minor role compared to disuse. Physical therapists can help guide patients to the appropriate amount and type of exercise through carefully tailored routines. As muscles atrophy, a skilled physical therapist can provide adjustments to exercises as well. The therapist can recommend games and fun activities that increase strength, lessen the risk of obesity, and improve heart health. Breathing Since muscular dystrophy affects respiratory functioning, physical therapists often lead patients in breathing exercises and activities designed to build respiratory strength. Developmental skills Physical therapists help children master vital developmental skills, such as crawling, jumping, climbing and eating. When looking for a physical therapist, it’s important to find someone who has experience in pediatric physical therapy and muscular dystrophy. She should be willing to work with other health care professionals and coordinate care with you, the parent or caregiver.

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Kerri graduated from James Madison University in 1984withaB.S. inSpeechPathologyandAudiology and received her M.S. degree from JMU in 1985 in Speech Pathology. Prior to working with Early Intervention through CPT, Kerri worked in the public school setting for 30 years. In addition to holding her Certificate of Clinical Competence from ASHA, Kerri is also a certified Early Intervention provider. Kerri resides in Roanoke, Virginia with her husband. She enjoys reading, time with family and friends and spending time with her son and daughter when they are home from college.

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