Support
New Nottinghamshire Natter We are delighted to announce our new Peer Support Group for Nottinghamshire - and would like to thank Nottingham’s own ‘NET’ nurse specialist Hannah B, and Maggie’s Nottingham, for their support in getting this group up and running. 29 people attended the first meeting, and here is some of the feedback from the 1st meeting:
support
sharing understanding together continuity informal information courage
belonging
contact
networking
community
listening
hope
social
empathy
Hannah has been vital to this group’s start: she has advocated across the hospital, encouraging colleagues to signpost and direct patients, and their loved ones, to the group, and has timetabled her own participation, to facilitate the group, as part of her work schedule.
She asked the group what matters most to them. Topics discussed and suggested included:
Peer Support: Regular meetings, informal setting, shared experiences, being heard, belonging, having someone present their experience...
Diet & Nutrition: Menu sheet, alcohol advice (can they have alcohol?), PERT information, how diet may help symptom management...
Information - and where to find it: NETs / NECs / Carcinoid: ALL types of NC not just the most common, access to info in different forms not just online, alternative and complimentary therapies, treatments, what comes after PRRT?, what happens after surgery - e.g., post-op exercise.
Self-care: Emotional support, financial support, family & friends support, general exercise and activity information
Involvement in research/trials.
www.neuroendocrinecancer.org.uk
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