Stories & Experiences
Pushing for a Pathway Chris, our newest Ambassador talks about his experience of diagnosis and treatment as well as the importance of a neuroendocrine cancer pathway
Name: Chris Neuroendocrine Cancer Site: Lung Hospital: Royal Free
We’re delighted to welcome Chris from Wiltshire, who has just joined our Neuroendocrine Cancer UK Ambassador team. Chris was diagnosed in February 2021 by a private lung specialist at the Spire Bristol Hospital, with a primary in his lung known as an Atypical Carcinoid. In terms of Lung NET classifications (sometimes called pulmonary NETS or bronchial NETS), there are 2 main classifications: TC (Typical Carcinoid) and AC (Atypical Carcinoid). These are differentiated by their KI67% score and Chris’s was Ki67 <5% … so AC.
Chris’s Story Initial Diagnosis and Chemotherapy
I had a course of chemotherapy quite quickly after diagnosis, doing 4 out of 6 cycles of Carboplatin and Streptozocin but it was unsuccessful. I asked for a second opinion at The Royal Free London but they didn’t think surgery was feasible. Luckily, one of the Consultant Thoracic surgeons – Dr Igor Saftic at Bristol Royal Infirmary – agreed to try to remove my main tumour and I credit him with saving my life. There’s always more than one way to approach cancer, in my experience.
www.neuroendocrinecancer.org.uk
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