Advocacy
ADVOCACY DAYS
In my last congressional meeting of the day, the emotions of the week began to sink in. With tears in my eyes, I shared my story with Minnesota Representative Betty McCollum’s office. One of Representative McCollum’s staffers thanked me for taking the time to meet with them and share my story. She said that when they introduce proposed bills to the House floor, our stories are the ones that make the biggest impact. Our stories matter. — Jenn Schultz “ 31 Advocates 14 States 38 Hill Meetings ”
Key Advocacy Priorities
Prevention Finalize FDA proposed rule to ban tanning bed use by minors Access l Permanently eliminate geographic restrictions and originating site requirements for telehealth use l Provide for a study examining the waiver of state licensure requirements and use of out-of-state telemedicine by Medicare beneficiaries during the pandemic l Remove cost barriers to skin cancer screenings at the state level Research l $40 million for Congressionally Directed Medical Research Programs (CDMRP) Melanoma Research Program (MRP) l Cover the ancillary costs associated with participation in clinical trials and offer digital health devices to trial participants without violating anti-kickback statutes l Support $50.9 billion for NIH, $9 billion for NCI, $6 million for CDC Skin Cancer Prevention Program and include melanoma language under NCI in LHHS Committee Report
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