Education
HIGHLIGHTS LAUNCHED A NEW WEBSITE TO BE THE PREMIER SOURCE FOR MELANOMA INFORMATION SEEKERS.
HOSTED 8 PATIENT SYMPOSIA ACROSS THE U.S. IN 2019 These symposia include information and meetings for patients with skin, ocular, mucosal and pediatric melanoma.
l Over 3 million visits in 2019 to
RALEIGH, NC
www.melanoma.org
COLUMBUS, OH
CHAPEL HILL, NC
l Expanded Education Institute with addition of new animated videos, webinars, educational literature and online courses
LOS ANGELES, CA
PHILADELPHIA, PA
WASHINGTON, DC
SEATTLE, WA
CHICAGO, IL
PUBLISHED TWO NEW INFOGRAPHICS ON MELANOMA CLINICAL TRIALS AND CREATED NEW “ABCDE” GUIDE TO SELF-SCREENING, #EYEGETDILATED POSTCARD AND OCULAR MELANOMA PATIENT GUIDE.
Blizzard Industries Blizzard Industries
Whyconsideraclinical trial formelanoma?
ABCDEs OF MELANOMA
butmoreresearch isneeded
Asa result, fewerpeoplearedying frommelanoma, even thoughmore peoplearebeingdiagnosedwith it.
In2018, the researchers whodeveloped immunotherapy for melanomawon the NobelPrize inmedicine .
Since2011, 12
Thesenew treatments include: • Immunotherapies, which boost thebody’s immune system to findand attackcancer • Targeted therapies, which targetandattack theparts ofmelanomacells thatmake themdi erent fromnormalcells
AGUIDE TO SPOTTINGMELANOMA
10,130
Doctor Doctor Dentist Dentist
Expected deaths from melanoma peryear
newmelanoma treatmentshave becomeavailable.
2019 7,230
Thesebasicguidelines are usedbymanydermatologists to help identifymelanoma, thedeadliest formof skin cancer.
2016
Patientssay theydon’t takepartbecause: • Theyaren’tawareofclinical trials • Theydon’t thinkclinical trialshappen where they live • They thinkclinical trialsareonly for patients ifstandard,approved treatmentsdon’twork
6outof10 clinical trials forcancermedicines (oncology trials)don’tenrollenoughvolunteers.
Catchingmelanoma early couldmean thedifferencebetween life and a life-threatening cancer.Knowingwhat to look for andperforming regular self-skin examsmay help youbecomemore awareof unusual spots that shouldbebrought to the attentionof adermatologist. If younoticeanunusual spotora spot thathasoneormoreof these characteristics,make anappointmentwithadermatologist—preferablyonewhohasexperiencewithmelanoma.
Dermatologist Dermatologist
Thismeansnew treatmentscan't complete testingandbemade available topeoplewithcancer.
Only1outof20peoplewith cancer takepart inaclinical trial.
Dilated Eye Exam Dilated Eye Exa
Youmaygetaccess toapromisingnew treatment that isnotavailable to thegeneral publicby takingpart inaclinical trial.
Insurveysofpeoplewhohavevolunteered forclinical trials:
ASYMMETRICAL SHAPE: Melanoma lesions areoften irregular,or not symmetrical, in shape.Benignmoles are usually symmetrical.
A
said takingpart inaclinical trial is notatall disruptive or notverydisruptive to their generaldaily routine
81%
You’llgetachance tohaveall yourquestionsanswered beforeyoudecide to takepart. Aeryou join,youcan leavea clinical trialatany time,and forany reason.
MISSING A CHECK? MISSING A CHECK?
BORDER: Typically, non-cancerousmoleshave smooth, even borders.Melanoma lesionsusuallyhave irregularborders that aredifficult todefine.
B
said thecare they receivedduringaclinical trial was thesame or better compared to theirusualcare
97%
WWW.CUREOM.ORG WWW.CUREOM.ORG
Only3outof10 peoplesay theirdoctorshavediscussed medical researchwith them.
would recommendvolunteering to familyor friends
91%
COLOR: Thepresenceofmore thanone color (blue,black, brown, tan,etc.)or theunevendistributionof color can sometimesbe awarning signofmelanoma.Benignmoles areusually a single shadeofbrownor tan.
C
Volunteers’ top3 reasons for takingpart in clinical trials: 1. Helping toadvancescienceand treatment 2. Getting better treatment 3. Helpingothers
Search www.melanoma.org/clinical-trials andspeak toyourdoctoraboutclinical trials thatmightbeagood fit foryou. Manymelanomaexpertsbelieve thatclinical trials couldbeyour firstandbest treatmentoption.
facebook.com/CureOM @MRFCureOM @curemelanoma facebook.com/CureOM @MRFCureOM @curemelanoma
D
DIAMETER: Melanoma lesions areoftengreater than 6millimeters indiameter (about the sizeof apencileraser).
E
Sources:
EVOLUTION (ORCHANGE): The evolutionof yourmole(s) hasbecome themost important factor to considerwhen it comes todiagnosing amelanoma. Knowingwhat is normal forYOU could save your life.
• Surveillance,Epidemiology,andEndResults (SEER)Program,2019.CancerStat Facts:Melanomaof theSkin.NationalCancer Institute. • LaboratoryCorporationofAmerica,2015.AddressingEver-risingCost inConducting ClinicalTrials.Covance, Inc. • InstituteofMedicineForumonDrugDiscovery,Development,andTranslation,2010. ClinicalTrials inCancer. InTransformingClinicalResearch in theUnitedStates: ChallengesandOpportunities:WorkshopSummary.NationalAcademiesPress.
• TheCenter for Information&StudyonClinicalResearch Participation (CISCRP),2017.Perceptionsand InsightsStudy, PublicandPatientPerceptionsofClinicalResearch.Report on theParticipationExperience. • ZogbyAnalytics/Research!America,2013.NationalPoll: ClinicalResearch.
E
*It is important tonote thatnotallmelanomas fallwithin theseparameters.
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