Advocacy
POLICY
Engaged 346 advocates in a letter writing campaign in support of increasing Department of Defense melanoma research funding to $20 million.
Supported a 6% increase in National Cancer Institute funding, totaling $6.5 billion in FY20.
As a direct result of 2019’s Hill Day efforts, we confirmed 23 congressional signatures supporting Representative Carolyn Maloney’s letter to the appropriations committee helping to secure $20 million in defense-funded melanoma research. MRF Advocacy Officer Cassie Beisel appointed Co-Chair of the National Council on Skin Cancer Prevention’s (NCSCP) Skin Smart Campus Initiative (SSC).
Supported the NIH’s Office of Rare Disease Research.
Supported Access to Care and protection of individuals with pre-existing conditions.
Submitted comments on the FDA’s Proposed Rule on Sunscreen.
Opposed the repeal of the Tanning Tax.
Supported passage of the Deferment for Active Cancer Treatment Act.
In partnership with the FDA held the first ever Patient-Led Ocular Melanoma Listening Session.
Supported a $2.6 billion overall funding increase for the National Institutes of Health.
Supported NC state bill for funding for the Huntersville Ocular Melanoma Study.
Nominated 17 melanoma advocates to serve as peer reviewers for the Congressionally Directed Medical Research Program (CDMRP) Melanoma Research Program (MRP).
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