We are excited to share our 2023 Annual Report! We are honored to show you how your impact has made a difference in the lives of the children and families we serve. Thank you for your continued support!
2023 ANNUAL REPORT
MISSION Ryan House enriches the quality of life and creates cherished memories for children and their families, providing a much-needed break from 24/7 caregiving, as they navigate life-limiting or end-of-life journeys. VISION We believe that everyone deserves care, dignity, peace, and compassion, especially as they face the unimaginable challenges of a life-limiting condition. As a leader in children’s palliative care, our goal is twofold: Providing care to children and their families and sharing information with other communities to assist them in developing their own unique models of care to help more families in need.
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VALUES Our values encompass everyone in our community. Care : We provide loving care and enhance the quality of life for children and families. People : We nurture relationships built on mutual trust. Compassion : We navigate challenging situations with kindness and love. Dignity : We honor and respect the unique journeys of all children and their families. Peace : We embrace children and their families while offering comfort and support in a homelike environment.
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Providing hope, health, and happiness
Hello and welcome to our annual report!
Because of your continued support, Ryan House is a beacon of hope for families navigating life-limiting conditions. Your generosity gives them the strength and resilience to face each day as we continue to provide love, care, and compassion to families facing these unimaginable challenges. Simple tasks can become monumental challenges for our families. Your contributions allow us to give families the vital support they need, precious moments of rest, time with loved ones, and the opportunity to pursue dreams.
Ryan House isn’t just a facility; it’s a magical place where children find joy, friendship, and acceptance. Our dedicated team creates a homelike environment where kids can thrive, free from limitations. Your donations make moments like adaptive activities, arts and crafts, and hydrotherapy sessions possible, enriching the lives of our children every day. As you read this year’s annual report, you will see the direct impact that your support has made this past year. With your support, we were able to enroll 188 children and families in our respite program and provide 32,448 hours of respite care to 114 children with life-limiting conditions and support 58 children and their families at end-of-life. You’ll also learn more about longtime Ryan House supporter, Plexus, a company deeply committed to providing hope, health, and happiness to its customers, team members, community, and Brand Ambassadors, who have supported Ryan House since 2018. Their partnership goes far beyond financial support making a tangible difference through volunteer projects in the house and at our signature events.
As we navigate a $3.5 million annual operating budget, your continued support remains our lifeline, ensuring that no family faces these challenges alone.
Together, we can make a difference. From our hearts to yours, thank you.
With gratitude,
Ashley Crowell
Tracy Leonard-Warner, MHI, MT-BC
Board Chair
Executive Director
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2023 Board of Directors Members Jane Andersen Randy Ek Daniel Franks Christine Guthrie Tom Jarvis Asha Karunakaran Chris Lutes Rita Meiser Shannon Schroeder Lisa Swanson Patricia Tucker Beth Warne
Executive Committee Ashley Crowell, Chair Mary Thompson, Vice Chair
Ex-Officio Members Rachel Behrendt, DNP, RN, NEA-BC Senior Vice President, Operations, Hospice of the Valley Tracy Leonard-Warner, MHI, MT-BC Executive Director
Rob Maver, Treasurer Oliver Fultz, Secretary
Keeley Dean, Member at Large Laura Tolson, Member at Large
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Respite Care Respite care is a gift of time; short-term overnight stays that help a family take breaks from the stress of 24/7 home care.
Palliative Care Palliative care aims to holistically identify and alleviate the physical, psychosocial, spiritual, and emotional pain for both the child and the family, enhance quality of life and minimize suffering. Pediatric End-of-Life Care Families with a child facing end-of-life receive supportive planning and compassionate care consistent with clinical, cultural, and ethical standards. Grief and Bereavement Support We offer Sibling Bridges of Support and Hope, family counseling through various programs, a memorial wall, an annual community event to honor children who have died, and Treasured Memories boxes to families that are filled with special keepsakes. Life-Enhancing Therapeutic Activities Certified child life specialist, certified music therapist and trained volunteers provide activities that address the isolation, pain, and fear children and siblings face with diagnosis and improve quality of life.
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Live Life To The Fullest
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Plexus Worldwide®: Cultivating Hope, Health, and Happiness Through Partnership
In the heart of every company lies a set of core values that shape its identity, its purpose, and its impact on the world. For Plexus, a company deeply committed to providing hope, health, and happiness to its customers, team members, community members, and Brand Ambassadors, these values extend beyond the realm of business and into the realm of giving back. Their commitment is evident in their partnership with Ryan House. The story of Plexus’s involvement with Ryan House is one of serendipity and shared purpose. It began in 2018 when Plexus found itself drawn to the mission of Ryan House and how it offers hope and comfort to families navigating the challenges of caring for a loved one with a life-limiting condition. While supporting Ryan House with a handful of programs and events during that time, both companies quickly recognized the synergies between their core values and mission and forged a partnership
enriching the lives of the families they serve. From volunteering at events and decorating the house, to sponsoring annual fundraisers like the Run for Ryan House and the White Christmas Gala, Plexus has demonstrated a steadfast dedication to making a meaningful impact. But perhaps the most profound aspect of Plexus’s partnership with Ryan House lies in the personal connections forged between Plexus employees and the families they serve. The connection runs especially deep for a family at Plexus who received care at Ryan House. “Learning through this family the incredible work that Ryan House does has been both humbling and inspiring,” Woods said. “It’s a reminder of why we do what we do and the difference we can make when we come together as a community.”
“Our partnership with Ryan House is a natural extension of who we are as a company,” said Plexus Director of Philanthropy, Elizabeth Woods. “Their mission resonates deeply with our own commitment to providing hope, health, and happiness to those in need.”
in January 2020, laying the foundation for a long- term collaboration built on trust, compassion, and a shared vision for a better world. “Our partnership with Ryan House is a natural extension of who we are as a company,” said Plexus Director of Philanthropy, Elizabeth Woods. “Their mission resonates deeply with our own commitment to providing hope, health, and happiness to those in need. It’s a partnership that goes beyond financial support. It’s about rolling up our sleeves, getting involved, and making a tangible difference in the lives of families facing unimaginable challenges.” Since the inception of their partnership, Plexus has been unwavering in its support of Ryan House, offering a range of services and initiatives aimed at
As Plexus looks to the future, its commitment to Ryan House remains unwavering. With a legacy of giving firmly established and a team of dedicated volunteers ready to lend a helping hand, Plexus is poised to continue making a lasting impact on the lives of those in need. “Our partnership with Ryan House is not just about writing a check – it’s about building a legacy of compassion, generosity, and hope,” said Woods. “Together, we can make a difference.” In the halls of Plexus and within the walls of Ryan House, a shared commitment to hope, health, and happiness serves as a guiding light, illuminating the path toward a brighter, more compassionate future for all.
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1,352 Respite Days Provided in FY23 393,912 Hours of Respite Care Provided Since Ryan House Opened in 2010
Last Year, Ryan House Provided: 208 Hours of Music Therapy 100 Hours of Young Arts Arizona 40 Hours of Partners that Heal
Impact of Your Giving
100% of families are able to participate in activities that are meaningful to them 92% of families feel connected to a community of support 100% of caregivers experience less stress and anxiety because of Ryan House
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In FY 23, 188 children and families were enrolled in our respite program. Ryan House provided 32,448 hours of respite care to 114 children with life-limiting conditions and supported 58 children and their families at end-of-life. Approximately 94% of the children qualifying for services at Ryan House reside in Maricopa County.
Who We Serve
FY 23 Diagnoses
Race
Trauma 2%
Other 20%
Caucasian 41%
Neurodevelopment & Nervous System Disorders 33%
Cancer 6%
Hispanic or Latino 23%
Congenital Malformations & Chromosomal Abnormalities 24%
Asian 2%
Undefined 25%
American Indian/ Alaskan Native 3%
Native Hawaiian or Other Pacific Islander 1%
Black/ African American 5%
Endocrine & Metabolic Disorders 7%
Respiratory System Disorders 3%
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Circle of Friends Giving Society
Ryan House’s Circle of Friends Giving Society is an exclusive group of supporters with donations of $1,000 or more in mission-critical funds during a fiscal year. As an organization that relies solely on contributions, your commitment and generosity is the reason that we can continue caring for children and their families as they navigate life-limiting and end-of- life journeys. We truly appreciate you and the support you give to Ryan House kids and families.
Julie and Wayne Anderson Matt Anderson Marisa Aragon Joel Arthur Adrian Balderrama Stephanie Balderrama Cherry and Peter Baumbusch Ashleigh Bechtel Wendy Bernatavicius Anna and Craig Berry Sarah and Jeff Birchall Kenlyn Blecker Nancy and George Bogle Kristina Brown Marjorie Buchanan James Burriss Judi and Budd Busche
Edra Drake Diane and John Eckstein Colleen and Jim Edwards
Janet Howe Amy Jo Hutchison Jane Iacobelli
John Egan Bethel Ells Danielle Ewing
Susan and James Janik Gina and Herb Jernukian Asha Karunakaran and Rajesh Vijayakumar
Mary Flynn Russell Fox Tara and Daniel Franks Elle and Oliver Fultz Julie and Dieter Gable
Denise and Eric Kaye Joy and Charles Kelley
Rachel and J. Scott Kimball Diana and Howard Krasnow
Nikki and Christopher Garrison Natalie and Edward Gaylord Markette Gianelli Richard Glazer and Jacque Weiss
M. Shawn Lampe J. Penny Larson Bonnie Larussa and Amy Shoptaugh Tracy Leonard-Warner and Randall Warner Gerald Lewis Linda Lewitter Nancy and Leo Lichter Ann Lindner Cassandra and Chad Littell Billy Long Thomas Maher Jill and Rick Marlette Bryan Marscovetra Sang Hee and Rob Maver Staci Mayer and William Friese Marty and Bob McAllister Diana and Franklin Mitchell Basha Mohammed Srimathy and Gopalakrishnan Mohan
Shirley Glickman Joanne Gordon Mara Greenberg Kathy and Dan Grubb
Kristin Buser Judd Carson
Winston Carter James Caviness Jennifer Chamberlin Dena Chulew Diane Cook Holly and Jonathan Cottor Sharon Cottor Hollie Crim Thomas and Sharolyn Crotty Debra and Mike Crouch Ashley and Zach Crowell Stephanie Cunningham Sheryl and Robert Damico Kathy and Rick Davids
Christine and Rob Guthrie Susan and Philip Hagenah Kristin and Murray Hamilton
Monique and Michael Hampton Kathleen and Michael Hanley Lorraine Hawley Linda Herold Jeanne and Frank Hertz Fred Hessler and Kathleen Mundy Denise and David Higgins Nancy and Nick Hilger Cheryl J. Hintzen-Gaines and Ira Gaines Kristyn Hiryak Cheryl and Timothy Hoenig Lynn Hoffman Brenda and James Howard
Mike DeMore Julie Dornbush Jackie and Ed Doyle
Connie Moore Bill Moroney* Rob Mroz
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Judy and Kent Mueller Lisa and Matthew Murphy Diana Murray Jill and Gene Nagel Linda and Michael Nance Katherine Nelson Lindsey and Joseph OSullivan Stephen Ochoa Nancy Okstein Andrea and John Pappas Joe Parenza Diane and Raymond Pava Megan and Roger Peacock Connie and Daniel Perez Katie and Ricardo Pina Sharon Powell Linda and Michael Powers John Propstra Anthony Richardson Deborah and Patrick Riley Kiffie and Chris Robbins Lucy and Wallace Roberson Donna and John Romanow
Eileen and Rob Rominger Paul Ruckel Rich Ryan Robert Ryan Yuki and Mark Sammons Alisha Sellers Pam and Bob Serr Richard Serr Eric Sieb Richard Simon Jill and Eric Simpson Maria and Steven Simpson Laura and David Sliman Dana and Kevin Smith Missy and Andrew Smith Lisa Socie and Jeff Huff Liz and Christopher Sokolowski Jaime and Anthony Spinato Eric St Pierre Jeanne and Bob Sterrett Gail and Geoff Stickler Mary and Duane Thompson Patrick Tilton
Laura and Jeff Tolson Carrie and Brad Tolstedt Pat Treeful Kathleen and Meyer Turken Jana Turner Klo and David Van Tuyle Melissa Vandewater
Jeffrey Vandrie Maureen Walz Ryan Weed Sue Weeks Salmans and Van Salmans
Judith and Joel Weinstein Lori and Robert Wentland Mary Weyenberg Peters Joy Wili Marilyn and Ralph Wilson Viviana and Peter Wilson Brian Winski DJ Younggren Ferne Zabezensky Barbara and Barry Zemel *In memoriam
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We are honored to recognize our most generous donors since our founding in 2004 . This group has supported the children and families of Ryan House with cumulative gifts or pledges or qualifying planned gifts of $25,000 or more through September 30, 2023.
Lifetime Giving Honor Roll
Over $1,000,000 Arizona Department of Health Services The Board of Visitors Gila River Indian Community Hospice of the Valley Virginia G. Piper Charitable Trust Salt River Pima - Maricopa Indian Community $500,000 - $999,999 The Kemper & Ethel Marley Foundation Three Desert Winds Foundation Thunderbirds Charities $100,000 - $499,999 Arizona Biz Bash, Inc. Arizona Central Credit Union Arizona Community Foundation
$50,000 - $99,999 Arizona Coyotes Foundation Arizona Private Charitable Foundation Arizona Public Service Nancy and George Bogle Cardinals Charities Paul Chait Memorial Golf Tournament The Charro Foundation Jessica Jennifer Cohen Foundation II David & Ruth S Coleman Foundation Colten Cowell Foundation Sharon and Robert* Cottor, M.D. Davignon Charitable Fund Edra Drake Diane and John Eckstein, M.D. Colleen and Jim Edwards Nancy Eriksson The Estate of Rocco Emma Fort McDowell Yavapai Nation Gases and Welding Distributors Association Susan and Philip Hagenah Cheryl Hintzen-Gaines and Ira Gaines IFDA J.P. Morgan Chase & Co. Phoenix Suns/Phoenix Mercury Foundation Bob Powers John Propstra Nina Mason Pulliam Charitable Trust The Estate of F Theodore & Diane E Reid Judy and Bill Schubert Southwest Gas Corporation State Of Arizona The Steele FoundationViaSun Joy Wili/Pam & Bob Serr/Paisley Mae Foundation
Arizona Diamondbacks Foundation Arizona Eastern Star Foundation Arizona Elks Major Projects Bank of America BHHS Legacy Foundation
Blue Cross Blue Shield of AZ Community Health Charities DC Ranch Community Council The DeMatteis Family Foundation Dutch Bros Coffee Executive Council Charities & The SAY Campaign Fiesta Bowl
Kathleen and Michael Hanley Karen and Robert C. Hobbs, Sr. Lynn Hoffman
The Humana Foundation Jane and Mario* Iacobelli Junior League of Phoenix Kitchell Corporation Maricopa County Mercy Care
Diana and Howard Krasnow Doris Lumsden Foundation McDonough Corporation
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Connie Moore The Moreno Family Foundation Jill and Gene Nagel National Bank Of Arizona Otto & Edna Neely Foundation Karrie and James F. Pierson, III Plexus Worldwide Leslie Propstra
Goodwill of Central & Northern Arizona Rodger & Kate Graef Family Foundation Kathleen and John Graham Jean Grossman* Kathy and Dan Grubb Christine and Robert Guthrie The Bruce T. Halle Family Foundation Susan & Richard Hare Family Foundation Patrick Harlan Jeanne and Gary* Herberger Claudia and Ray Herzog Denise and David Higgins Kappa Kappa Gamma – Epsilon Delta The Keller Foundation Randy and Earl G. Kendrick, Jr. Lerner & Rowe Gives Back Liam’s Room Larry H. Miller Charities Teresa and Todd Miller Srimathy and Gopalakrishnan Mohan Michelle and Marc Morris Nancy Okstein The Pakis Family Foundation The Bob and Renee Parsons Foundation PGA Tour, Inc. William L. & Ruth T. Pendleton Memorial Fund The Power Open, Inc. John and Alice Powers Foundation The Pruessing Charitable Fund Betti and Richard Robinson Christopher & Dana Reeve Foundation Ryan Companies The Saguaros Louis Legacy Foundation Major League Conditioning Ina and Murray Manaster
Joan C. Ray Charitable Foundation The David E Reese Family Foundation Rowley Family Foundation Sue Weeks Salmans and Van Salmans Sequoia Shutterfly SRP Kristin and Drew Stanton Sundt Construction Faye and Tom Tait United States Tennis Association, Inc. Valley of the Sun Active 20/30 Jacque Weiss and Richard Glazer, D.M.D. Wells Fargo West Valley Lutheran Thrift Shop Western Alliance Bank of Arizona Alan D. & Wendy R. Wilson Foundation Marylou and Carlos J. Zilveti $25,000 - $49,999 Patricia and Patrick Althoff Arciterra Arizona Commercial Real Estate Women The Arizona Republic Joel Arthur Azadi Banner University Health Plans Bashas’ Anna and Craig Berry Marjorie Buchanan Judith and Budd Busche David Cantelme Shirley C. Caris Family Foundation Shannon and Ted Chapman Susie and Wally Chester City of Phoenix Clean Machine Car Wash LLC CopperPoint Mutual Insurance Company Holly and Jonathan Cottor Cox Charities Davidson Family Foundation Dignity Health Karen and David Divine Jacquie and Bennett Dorrance Elks National Foundation Employees Community Fund of Boeing Excellence in Giving The Alberta B. Farrington Foundation First International Bank and Trust FootHills Sports Medicine Physical Therapy
Werner Schumacher Seasons For Sharing Suzanne Sikora
Liz and Christopher Sokolowski Anne and James W. Spellman Synergos Companies Lynn and Chip Tolleson TriWest Healthcare Alliance True Story Films Valley Anesthesiology Foundation Vitalyst The Walmart Foundation Cindy and Michael Watts The Wayne Foundation Cindy and Paul Weiser Wentworth Property Company Diane Willian
Willmeng Construction Zilveti Family Foundation
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FY23 Financial Snapshot
2023
2022
Assets Current Assets
$ $
5,361,849
$ $
5,297,742
Long Term Assets
371,243
223,032
Total Assets
$ 5,733,092 $ 5,520,774
Liabilities Current Liabilities Total Liabilities
$
537,771
$
444,218
$ 537,771 $ 444,218
Net Assets Without Donor Restrictions With Donor Restrictions
$ $
4,918,292
$ $
4,764,770
277,029
311,786
Total Net Assets
$ 5,195,321 $ 5,076,556
Total Liabilities and Net Assets
$ 5,733,092 $ 5,520,774
Statement of Activities for the Year Ended September 30, 2023
Total Support and Revenue
$ $ $
3,578,198 3,459,433
$ $ $
2,517,094 3,143,959 (626,865)
Total Expenses
Change in Net Assets
118,765
Expense Allocations
Sources of Operating Support & Revenue
Fundraising 14%
Grants & Contracts 29%
Events 17%
Administration 8%
Mail Appeals Tax Credit 4%
In-Kind 19%
Program Services 78%
Corporations & Organizations 11%
Individuals 20%
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ryanhouse.org 110 W Muhammad Ali Way, 1st Floor Phoenix, AZ 85013 602-200-0767 info@ryanhouse.org
facebook.com/ryanhouse.org
@ryanhouseaz
We are 100% funded by donations. As a registered 501(c)(3) and Arizona qualifying charitable organization, any donation made, including your Arizona charitable tax credit, is tax deductible. Allocating your donation to Ryan House serves as a lifeline to our families.
As a 501(c)(3), Ryan House is eligible to receive stocks, bequests and legacy gifts. Please call (602) 200-0767 for more information.
Cover photo courtesy of Dave Seibert Media
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