MRF Stewardship Report Volume 5 FINAL

Education and Awareness RARE SUBTYPES

EYES ON A CURE: PATIENT AND CAREGIVER GLOBAL SYMPOSIUM HELD ON NOVEMBER 19–21, 2020 l  Over 400 participants from 10 countries l  Live presentations from the US, UK, Canada, Australia and New Zealand

NEW #EYEGETDILATED CAMPAIGN LAUNCHED IN NOVEMBER 2020

Encouraged everyone to schedule a dilated eye exam and share photos from their visit to increase awareness. MRF partner CROWNS AGAINST CANCER went in costume as film and fairy-tale heroes to increase awareness.

EYES ON A CURE: MINI SUMMIT HELD ON APRIL 29, 2021

INAUGURAL #OUTOFTHESHADOWS MUCOSAL MELANOMA AWARENESS CAMPAIGN LAUNCHED IN FEBRUARY 2021

l  More than 150 registrants l  Speakers and presentations from five institutions

Featured inspiring patient and caregiver stories sharing experiences of a rare disease that can be uncomfortable to talk about.

The MRF introduces #GetNaked , its first awareness campaign for cutaneous melanoma.

With the addition of #EyeGetDilated , #SeeSpotSeeDoc and #OutOfTheShadows , all forms of melanoma have a nationwide annual awareness campaign.

2014

2021

TIMELINE

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