MRF Stewardship Report Vol 4 - Fall 2020

CURE OM RARE SUBTYPES

EXPANDED EDUCATION AND SUPPORT RESOURCES

INTERNATIONAL COLLABORATION: The founders of CURE OM , Ocumel Canada , OcuMel Irl and New partnership with Colorado Retina and the University of Denver to offer monthly support groups. In person meetings transitioned to virtual platform due to current social distancing regulations. An average of 15 people attend each meeting.

CURE OM Facebook Live information session with Co-Founder and Director Sara Selig, MD, MPH viewed over 1.8k times

OcuMel UK hosted a virtual discussion of COVID-19 and its effects on the OM community. Future meetings are planned to unite the OM community across the world.

New ocular melanoma webinars added to MRF Education Institute

Over 20 OM patients and caregivers have attended monthly online support groups facilitated by Thomas Jefferson University Oncology Social Workers

l Treating OM During COVID-19 l When a Parent Has Cancer l Advanced Care Planning l Adapting to Monocular Vision

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