NCUK Virtual Patient Handbook

Associated Syndromes (presence or absence of neuroendocrine A) If you have a family history of neuroendocrine cancer - are these l endocrine neoplasia (MEN1-4), Von-Hippel Lindau, etc . . .? • If yes - have you been tested? What was the result? • If no - is there anything to suggest that you might have one of the B) Do you have any symptoms that could be related to excess hormo Can the MDT confirm the primary site? Has it been removed? - some patients may have already had surgery before referral to the neuroendocrine cancer MDT: • as an emergency before diagnosis confirmed - for example, if someone has had bowel obstruction or presented with appendicitis - and only been diagnosed after the operation has taken place.

• where another diagnosis suspected e.g., pancreatic cancer or Crohn’s - and diagnosis only confirmed after surgery • or where surgery was for removal of a neuroendocrine cancer If it hasn’t been removed - Is it the only site of disease? Is there any evidence to suggest it has spread?

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