NCUK Virtual Patient Handbook

Examples of Follow Up Care

Example for Grade 1-2 NET:

Following surgery: 6-12 weeks post-surgery, then 3-6 monthly for 1-2 monthly for 2-5 years, then annually (life-long): if disease (and sympto Following diagnosis (if inoperable - no surgery): 6-12 weeks post diag for 1-2 years, then 6-12 monthly (life-long): if disease (and symptoms) Tests / scans: • Bloods +/- urine +/- tumour markers and gut hormone profile • Bi (or tri) phasic CT (chest / abdomen) +/- MRI (liver / abdomen / pe • Endoscopic interventions dependent on primary site Nuclear Medicine imaging: Octreoscan / Gallium-Dotatate scan (if positive at diagnosis): Some gu of scan is usually repeated if progression / recurrence occurs and resu n.b. High-Grade 2 / atypical carcinoid may benefit from also undergoin active than known disease behaviour. Advanced inoperable disease: should be guided by prognosis, that is, related toxicity, alongside your physical status. Your health, well-being, physical activity, informed choice and preferen and discussed to best plan care.

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