NCUK Virtual Patient Handbook

Beyond Diagnosis: There will be times, in the following weeks, months or years, following may change. Those diagnosed, and their loved ones, have described living with neu as well as possible changes in physical health, cancer status, worry ab mood. At Diagnosis : Being told you have neuroendocrine cancer may have come as a shoc part of a routine health-check, health screen or other reason, but also On the other hand, it may have come as some kind of relief - particula why you’ve not been feeling well and having a name for it, can help - e The emotions you may experience, at this time, may be varied and va been a delay in diagnosis, or you have been told your symptoms were These emotions of disbelief, fear, relief, anger, anxiety are common an Your feelings, your reaction may be influenced by concerns for your fa happens next?” or you may feel numb, a sensation you cannot find wo For some of you there may be added uncertainty about your diagnosis or even ‘carcinoid’ may be used instead. ( Barriers to Diagnosis Surv This may leave you with all sorts of questions and concerns about wha it may mean for you and your life moving forward.

Click here to read Maxine’s story - ‘Not the life we’d planned’

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