NCUK Virtual Patient Handbook

The Future Living with the uncertainty of a neuroendocrine cancer diagnosis can b cancers, and your new ‘normal’ may feel very different to your life befo Whatever treatment you’ve had for your neuroendocrine cancer, your future holds can make you feel very vulnerable. This can cause a lot o Neuroendocrine cancer, though considered a rare diagnosis, by type a • Incidence is a measure of the number of new cases in a population • Prevalence, is the proportion of a population who have a specific ch period, regardless of when they first developed the disease: in other Many people living with a neuroendocrine cancer, tell us they live well symptoms and treatments. While they describe varying periods of stability, they also describe mo scans or appointments. Understanding ‘follow up’ timings and agreein Ongoing tests Exactly which follow-up tests you may need depends on your individua health, the progress of your neuroendocrine cancer / your response to your care team recommends a test, it can ease your mind to find out w your ongoing care. It can be hard not to worry about the outcome of th

Click here to read Kate’s experience of living with lung neuroendocrine cancer

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