NCUK Virtual Patient Handbook

be extremely difficult. It is a complex and unpredictable group of ore diagnosis. response to it / how stable your cancer is, not knowing what the of emotional strain, not just for you but for those close to you. and incidence, is the 10th most prevalent cancer, in England. in a specified time period. haracteristic, for example neuroendocrine cancer in a given time r words, its the number of people living with a condition. l, making some adjustments to their lives, depending on their

oments of anxiety and apprehension, usually around the times of ng when and how results will be available, can help.

al situation. You might have blood tests and scans to monitor your o treatments. You might find it helps to ask for more information. If why it’s necessary, what are they looking for and how might this affect hese tests, even if you feel well. This is perfectly normal. One of the main challenges described by people living with a neuroendocrine cancer is this constancy, the sense that your cancer is always there. You live with the “new normal”, and for periods of time, usually between scans / treatments, you may even, temporarily forget it’s there. But ongoing follow-up tests are a constant reminder that cancer is an ongoing part of your

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